My Toolkit

DD = Data Dictionary
DCW = Data Collection Worksheet

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Essential Protocols

Total Protocols in My Toolkit: 59
	Broad Psychopathology - Adult The Diagnostic and Statistical Manual of Mental Disorders, Fifth Edition (DSM-5) Check all Current Age Add to Toolkit Remove
	Coping with COVID-19 COVID-19 Experiences (COVEX) Check all Current Age Household Roster-Relationships Add to Toolkit Remove
	Coronavirus Anxiety Scale Coronavirus Anxiety Scale (CAS) Check all COVID-19 Related Health Questions Current Address Current Age Educational Attainment - Individual Ethnicity and Race Add to Toolkit Remove
	COVID-19 and Mental Health Impacts COVID-19 Community Response Survey Remove
	COVID-19 Related Impact on Sleep Coping with COVID-19: Impact on technology use, mobility, food security, depression and social isolation Check all Current Age Add to Toolkit Remove
	Effects of COVID-19 Outbreak - Adult ECHO COVID-19 Questionnaire - Adult Primary Version Check all Current Age Household Roster-Relationships Add to Toolkit Remove
	Effects of COVID-19 Outbreak - Child Parent-Report ECHO Impacts of COVID-19 Outbreak on Child Parent-Report Check all Current Age Ethnicity and Race Household Roster-Relationships Add to Toolkit Remove
	Effects of COVID-19 Outbreak - Child Self-Report ECHO Impacts of COVID-19 Outbreak on Child Self-Report Check all Current Age Ethnicity and Race Household Roster-Relationships Add to Toolkit Remove
	Perceived Stress Perceived Stress Scale Check all Current Age Add to Toolkit Remove
	Quality of Life - Adult Patient-Reported Outcomes Measurement Information System® (PROMIS) 29 Profile, v. 2.0 Adult Profile Check all Current Age Add to Toolkit Remove
	Quality of Life - Pediatric Patient-Reported Outcomes Measurement Information System® (PROMIS) Item Bank, v.1.1, Pediatric Profile 25 Check all Current Age Add to Toolkit Remove
	Access to Health Services National Health Interview Survey (NHIS) Utilization Questionnaire, 2020 Check all Current Address Current Age Ethnicity and Race Health Insurance Coverage Add to Toolkit Remove
	COVID-19 Related Health Questions UK COVID-19 Questionnaire Check all Current Age Current Pregnancy Status - Self-Report Medical History Personal History of Allergies, Infectious Diseases, and Immunizations - Adult Add to Toolkit Remove
	Health Conditions, Medications and Health Care During COVID-19 Pandemic COVID-19 Community Response Survey Check all Current Age Ethnicity and Race Add to Toolkit Remove
	Medical History My Personal Health Record (MyPHR), Adult PHR Form, 2006 Check all Current Age Add to Toolkit Remove
	Medication Inventory Multi-Ethnic Study of Arthrosclerosis (MESA), Medications, 2000 Check all Current Age Add to Toolkit Remove
	Personal History of Allergies, Infectious Diseases, and Immunizations - Adult My Personal Health Record (MyPHR), Adult PHR Form, 2006 Check all Current Age Add to Toolkit Remove
	Personal Medical History of Allergies, Infectious Diseases, and Immunizations - Child My Personal Health Record (MyPHR), Child PHR Form, 2006 Check all Current Age Add to Toolkit Remove
	Vulnerability and Exposure to COVID-19 COVID-19 Experiences (COVEX) Check all Current Age Ethnicity and Race Add to Toolkit Remove
	COVID-19 Vaccination - Adult Johns Hopkins COVID Long Study Remove
	COVID-19 Vaccination - Child Long COVID in Children and Young People (The CLoCk Study) Remove
	Birthplace American Community Survey (ACS), 2008 Remove
	Current Employment Status Panel Study of Income Dynamics (PSID), 2007 Check all Current Age Add to Toolkit Remove
	Current Marital Status Behavioral Risk Factor Surveillance System (BRFSS), Core Section 8: Demographics, 2018 Check all Current Age Add to Toolkit Remove
	Cyberbullying Due to Racial/Ethnic Bias The Coronavirus Racial Bias Scale (CRBS) Check all Ethnicity and Race Add to Toolkit Remove
	Discrimination Major Experiences and Everyday Discrimination Scales Check all Current Age Ethnicity and Race Add to Toolkit Remove
	Disparate Health Care Quality California Health Interview Survey (CHIS), 2017 Check all Ethnicity and Race Add to Toolkit Remove
	Ethnicity and Race U.S. Census Bureau, Census 2020, Questionnaire Remove
	Educational Impact Due to COVID-19 Coronavirus Tracking Survey of the Understanding America Survey (UAS) Check all Childs Lifetime Household Composition Current Address Ethnicity and Race Add to Toolkit Remove
	Race/Ethnic Residential Segregation - American Community Survey American Community Survey (ACS), 5-year estimates Check all Current Address Residential History Add to Toolkit Remove
	Race/Ethnic Residential Segregation - Separation (S) Index, Unbiased American Community Survey (ACS), 5-year estimates Remove
	Race/Ethnic Residential Segregation - U.S. Census U.S. Census Bureau, Census, 1990, 2000, 2010 Check all Current Address Residential History Add to Toolkit Remove
	Years Living in the U.S. National Health Interview Survey (NHIS), Family Questionnaire, 2007 Check all Birthplace Current Age Add to Toolkit Remove
	Current Address National Health and Nutrition Examination Survey (NHANES), Screener Module 1, 2019-2020 Remove
	Long COVID - Symptoms Due to COVID-19 - Screener Johns Hopkins COVID Long Study Check all COVID-19 Related Health Questions Add to Toolkit Remove
	Long COVID - Symptoms Due to COVID-19 - Memory Online Survey on Recovery from COVID-19 Check all COVID-19 Related Health Questions Add to Toolkit Remove
	Long COVID - Symptoms Due to COVID-19 - Neurology Online Survey on Recovery from COVID-19 Check all COVID-19 Related Health Questions Add to Toolkit Remove
	Long COVID - Symptoms Due to COVID-19 - Psychological Risk Factors Johns Hopkins COVID Long Study Check all COVID-19 Related Health Questions Add to Toolkit Remove
	Long COVID - Symptoms Due to COVID-19 - Speech, Language, and Hearing Online Survey on Recovery from COVID-19 Check all COVID-19 Related Health Questions Add to Toolkit Remove
	Long COVID - Symptoms Due to COVID-19 - Psychiatric (Short Form) Online Survey on Recovery from COVID-19 Check all COVID-19 Related Health Questions Add to Toolkit Remove
	Long COVID - Symptoms Due to COVID-19 - Psychiatric (Long Form) Johns Hopkins COVID Long Study Check all COVID-19 Related Health Questions Add to Toolkit Remove
	Long COVID - Symptoms Due to COVID-19 - Temperature Regulation and Cardiovascular Online Survey on Recovery from COVID-19 Check all COVID-19 Related Health Questions Add to Toolkit Remove
	Long COVID - Symptoms Due to COVID-19 - Cardiovascular Symptom Course Johns Hopkins COVID Long Study Check all COVID-19 Related Health Questions Add to Toolkit Remove
	Long COVID - Symptoms Due to COVID-19 - Respiratory Johns Hopkins COVID Long Study Check all COVID-19 Related Health Questions Add to Toolkit Remove
	Long COVID - Symptoms Due to COVID-19 - Gastrointestinal (Long Form) Online Survey on Recovery from COVID-19 Check all COVID-19 Related Health Questions Add to Toolkit Remove
	Long COVID - Symptoms Due to COVID-19 - Gastrointestinal (Short Form) Johns Hopkins COVID Long Study Check all COVID-19 Related Health Questions Add to Toolkit Remove
	Long COVID - Symptoms Due to COVID-19 - Allergies Online Survey on Recovery from COVID-19 Check all COVID-19 Related Health Questions Add to Toolkit Remove
	Long COVID - Symptoms Due to COVID-19 - Skin and Hair Johns Hopkins COVID Long Study Check all COVID-19 Related Health Questions Add to Toolkit Remove
	Long COVID - Symptoms Due to COVID-19 - Ocular (Long Form) Online Survey on Recovery from COVID-19 Check all COVID-19 Related Health Questions Add to Toolkit Remove
	Long COVID - Symptoms Due to COVID-19 - Ocular (Short Form) Johns Hopkins COVID Long Study Check all COVID-19 Related Health Questions Add to Toolkit Remove
	Long COVID - Symptoms Due to COVID-19 - Genitourinary Online Survey on Recovery from COVID-19 Check all COVID-19 Related Health Questions Add to Toolkit Remove
	Long COVID - Symptoms Due to COVID-19 - Muscle and Joint Johns Hopkins COVID Long Study Check all COVID-19 Related Health Questions Add to Toolkit Remove
	Long COVID - Symptoms Due to COVID-19 - Tooth Pain Johns Hopkins COVID Long Study Check all COVID-19 Related Health Questions Add to Toolkit Remove
	Long COVID - Symptoms Due to COVID-19 - Pediatric Long COVID in Children and Young People (The CLoCk Study) Check all COVID-19 Related Health Questions Add to Toolkit Remove
	Long COVID - Daily Living Sequelae in Adults at 6 Months After COVID-19 Infection Check all COVID-19 Related Health Questions Add to Toolkit Remove
	Long COVID - Physical Functioning Johns Hopkins COVID Long Study Check all COVID-19 Related Health Questions Add to Toolkit Remove
	Long COVID - Current Quality of Life - Child Long COVID in Children and Young People (The CLoCk Study) Check all COVID-19 Related Health Questions Add to Toolkit Remove
	Long COVID - Comorbidities and COVID-19 Impact Online Survey on Recovery from COVID-19 Check all COVID-19 Related Health Questions Add to Toolkit Remove
	Long COVID - Multisystem Inflammatory Syndrome - Child Global COVID-19 Clinical Platform: Case Report Form for Suspected Cases of Multisystem Inflammatory Syndrome (MIS) in Children and Adolescents Temporally Related to COVID-19 Check all COVID-19 Related Health Questions Add to Toolkit Remove
Total Protocols in My Toolkit: 59

Essential Protocols are needed to interpret your data. Add all Essential Protocols to your Toolkit.

Create Citations

To cite protocols in My Toolkit, copy & paste the text below:

PhenX Toolkit. (2026 January 18). Broad Psychopathology - Adult. https://www.phenxtoolkit.org/protocols/view/610201

PhenX Toolkit. (2026 January 18). Coping with COVID-19. https://www.phenxtoolkit.org/protocols/view/960501

PhenX Toolkit. (2026 January 18). Coronavirus Anxiety Scale. https://www.phenxtoolkit.org/protocols/view/960401

PhenX Toolkit. (2026 January 18). COVID-19 and Mental Health Impacts. https://www.phenxtoolkit.org/protocols/view/960101

PhenX Toolkit. (2026 January 18). COVID-19 Related Impact on Sleep. https://www.phenxtoolkit.org/protocols/view/960301

PhenX Toolkit. (2026 January 18). Effects of COVID-19 Outbreak - Adult. https://www.phenxtoolkit.org/protocols/view/960201

PhenX Toolkit. (2026 January 18). Effects of COVID-19 Outbreak - Child Parent-Report. https://www.phenxtoolkit.org/protocols/view/960205

PhenX Toolkit. (2026 January 18). Effects of COVID-19 Outbreak - Child Self-Report. https://www.phenxtoolkit.org/protocols/view/960203

PhenX Toolkit. (2026 January 18). Perceived Stress. https://www.phenxtoolkit.org/protocols/view/180801

PhenX Toolkit. (2026 January 18). Quality of Life - Adult. https://www.phenxtoolkit.org/protocols/view/221302

PhenX Toolkit. (2026 January 18). Quality of Life - Pediatric. https://www.phenxtoolkit.org/protocols/view/221301

PhenX Toolkit. (2026 January 18). Access to Health Services. https://www.phenxtoolkit.org/protocols/view/270101

PhenX Toolkit. (2026 January 18). COVID-19 Related Health Questions. https://www.phenxtoolkit.org/protocols/view/940101

PhenX Toolkit. (2026 January 18). Health Conditions, Medications and Health Care During COVID-19 Pandemic. https://www.phenxtoolkit.org/protocols/view/940301

PhenX Toolkit. (2026 January 18). Medical History. https://www.phenxtoolkit.org/protocols/view/161301

PhenX Toolkit. (2026 January 18). Medication Inventory. https://www.phenxtoolkit.org/protocols/view/140301

PhenX Toolkit. (2026 January 18). Personal History of Allergies, Infectious Diseases, and Immunizations - Adult. https://www.phenxtoolkit.org/protocols/view/161602

PhenX Toolkit. (2026 January 18). Personal Medical History of Allergies, Infectious Diseases, and Immunizations - Child. https://www.phenxtoolkit.org/protocols/view/161601

PhenX Toolkit. (2026 January 18). Vulnerability and Exposure to COVID-19. https://www.phenxtoolkit.org/protocols/view/940201

PhenX Toolkit. (2026 January 18). COVID-19 Vaccination - Adult. https://www.phenxtoolkit.org/protocols/view/940401

PhenX Toolkit. (2026 January 18). COVID-19 Vaccination - Child. https://www.phenxtoolkit.org/protocols/view/940402

PhenX Toolkit. (2026 January 18). Birthplace. https://www.phenxtoolkit.org/protocols/view/10201

PhenX Toolkit. (2026 January 18). Current Employment Status. https://www.phenxtoolkit.org/protocols/view/11301

PhenX Toolkit. (2026 January 18). Current Marital Status. https://www.phenxtoolkit.org/protocols/view/10903

PhenX Toolkit. (2026 January 18). Cyberbullying Due to Racial/Ethnic Bias. https://www.phenxtoolkit.org/protocols/view/970201

PhenX Toolkit. (2026 January 18). Discrimination. https://www.phenxtoolkit.org/protocols/view/210302

PhenX Toolkit. (2026 January 18). Disparate Health Care Quality. https://www.phenxtoolkit.org/protocols/view/280101

PhenX Toolkit. (2026 January 18). Ethnicity and Race. https://www.phenxtoolkit.org/protocols/view/11901

PhenX Toolkit. (2026 January 18). Educational Impact Due to COVID-19. https://www.phenxtoolkit.org/protocols/view/970101

PhenX Toolkit. (2026 January 18). Race/Ethnic Residential Segregation - American Community Survey. https://www.phenxtoolkit.org/protocols/view/211403

PhenX Toolkit. (2026 January 18). Race/Ethnic Residential Segregation - Separation (S) Index, Unbiased. https://www.phenxtoolkit.org/protocols/view/211404

PhenX Toolkit. (2026 January 18). Race/Ethnic Residential Segregation - U.S. Census. https://www.phenxtoolkit.org/protocols/view/211402

PhenX Toolkit. (2026 January 18). Years Living in the U.S.. https://www.phenxtoolkit.org/protocols/view/11201

PhenX Toolkit. (2026 January 18). Current Address. https://www.phenxtoolkit.org/protocols/view/10802

PhenX Toolkit. (2026 January 18). Long COVID - Symptoms Due to COVID-19 - Screener. https://www.phenxtoolkit.org/protocols/view/992001

PhenX Toolkit. (2026 January 18). Long COVID - Symptoms Due to COVID-19 - Memory. https://www.phenxtoolkit.org/protocols/view/992002

PhenX Toolkit. (2026 January 18). Long COVID - Symptoms Due to COVID-19 - Neurology. https://www.phenxtoolkit.org/protocols/view/992003

PhenX Toolkit. (2026 January 18). Long COVID - Symptoms Due to COVID-19 - Psychological Risk Factors. https://www.phenxtoolkit.org/protocols/view/992004

PhenX Toolkit. (2026 January 18). Long COVID - Symptoms Due to COVID-19 - Speech, Language, and Hearing. https://www.phenxtoolkit.org/protocols/view/992005

PhenX Toolkit. (2026 January 18). Long COVID - Symptoms Due to COVID-19 - Psychiatric (Short Form). https://www.phenxtoolkit.org/protocols/view/992006

PhenX Toolkit. (2026 January 18). Long COVID - Symptoms Due to COVID-19 - Psychiatric (Long Form). https://www.phenxtoolkit.org/protocols/view/992007

PhenX Toolkit. (2026 January 18). Long COVID - Symptoms Due to COVID-19 - Temperature Regulation and Cardiovascular. https://www.phenxtoolkit.org/protocols/view/992008

PhenX Toolkit. (2026 January 18). Long COVID - Symptoms Due to COVID-19 - Cardiovascular Symptom Course. https://www.phenxtoolkit.org/protocols/view/992009

PhenX Toolkit. (2026 January 18). Long COVID - Symptoms Due to COVID-19 - Respiratory. https://www.phenxtoolkit.org/protocols/view/992010

PhenX Toolkit. (2026 January 18). Long COVID - Symptoms Due to COVID-19 - Gastrointestinal (Long Form). https://www.phenxtoolkit.org/protocols/view/992011

PhenX Toolkit. (2026 January 18). Long COVID - Symptoms Due to COVID-19 - Gastrointestinal (Short Form). https://www.phenxtoolkit.org/protocols/view/992012

PhenX Toolkit. (2026 January 18). Long COVID - Symptoms Due to COVID-19 - Allergies. https://www.phenxtoolkit.org/protocols/view/992013

PhenX Toolkit. (2026 January 18). Long COVID - Symptoms Due to COVID-19 - Skin and Hair. https://www.phenxtoolkit.org/protocols/view/992014

PhenX Toolkit. (2026 January 18). Long COVID - Symptoms Due to COVID-19 - Ocular (Long Form). https://www.phenxtoolkit.org/protocols/view/992015

PhenX Toolkit. (2026 January 18). Long COVID - Symptoms Due to COVID-19 - Ocular (Short Form). https://www.phenxtoolkit.org/protocols/view/992016

PhenX Toolkit. (2026 January 18). Long COVID - Symptoms Due to COVID-19 - Genitourinary. https://www.phenxtoolkit.org/protocols/view/992017

PhenX Toolkit. (2026 January 18). Long COVID - Symptoms Due to COVID-19 - Muscle and Joint. https://www.phenxtoolkit.org/protocols/view/992018

PhenX Toolkit. (2026 January 18). Long COVID - Symptoms Due to COVID-19 - Tooth Pain. https://www.phenxtoolkit.org/protocols/view/992019

PhenX Toolkit. (2026 January 18). Long COVID - Symptoms Due to COVID-19 - Pediatric. https://www.phenxtoolkit.org/protocols/view/992020

PhenX Toolkit. (2026 January 18). Long COVID - Daily Living. https://www.phenxtoolkit.org/protocols/view/992101

PhenX Toolkit. (2026 January 18). Long COVID - Physical Functioning. https://www.phenxtoolkit.org/protocols/view/992201

PhenX Toolkit. (2026 January 18). Long COVID - Current Quality of Life - Child. https://www.phenxtoolkit.org/protocols/view/992301

PhenX Toolkit. (2026 January 18). Long COVID - Comorbidities and COVID-19 Impact. https://www.phenxtoolkit.org/protocols/view/992401

PhenX Toolkit. (2026 January 18). Long COVID - Multisystem Inflammatory Syndrome - Child. https://www.phenxtoolkit.org/protocols/view/992501

Data Dictionary and Data Collection Worksheet

Data Collection Worksheet (DCW): The DCW identifies each data and metadata item to be collected as required by the protocol. The DCW is provided as an MS Word document to facilitate easy integration into existing study documentation.

Data Dictionary (DD): The DD lists each variable collected by a protocol data collection worksheet (DCW) and its attributes. DDs are available in three formats: 1) RTF format captures skip patterns commonly used in epidemiologic studies; 2) CSV format is compatible with the database of Genotypes and Phenotypes (dbGaP) data submission packet; 3) REDCap ZIP file format is suitable for upload to studies being implemented in REDCap.

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