Protocol - Long COVID - Symptoms Due to COVID-19 - Ocular (Long Form)
Description
This protocol helps better describe and understand the patient experience and recovery of those with confirmed or suspected COVID-19, with a specific emphasis on Long COVID experience especially with ocular.
Specific Instructions
None
Availability
This protocol is freely available; permission not required for use.
Protocol
Eye and Vision Symptoms
1. Did you experience these symptoms, and when did you experience them?
[ ] None of the below eye and vision symptoms apply to me
Eye and Vision Symptoms
N/A | Week 1 | Week 2 | Week 3 | Week 4 | Month 2 | Month 3 | Month 4 | Month 5 | |
Vision symptoms | [ ] | [ ] | [ ] | [ ] | [ ] | [ ] | [ ] | [ ] | [ ] |
Other eye symptoms | [ ] | [ ] | [ ] | [ ] | [ ] | [ ] | [ ] | [ ] | [ ] |
All Other Symptoms - Checkbox
2. Have you experienced any of these symptoms since the start of your COVID-19 illness? (Please choose all options that apply)
[ ] Vision symptoms - Blurred vision
[ ] Vision symptoms - Double vision
[ ] Vision symptoms - Sensitivity to light
[ ] Vision symptoms - Tunnel vision
[ ] Vision symptoms - Total loss of vision
[ ] Eye pressure or pain
[ ] Pink eye (conjunctivitis)
[ ] Bloodshot eyes
[ ] Dry eyes
[ ] Redness on the outside of eyes
[ ] Floaters
[ ] Seeing things in your peripheral vision
[ ] Other eye issues: ________
[ ] None of the above
Symptom Course
3. How severe were/are your symptoms over the course of the weeks/months?
If you experienced multiple severities for symptoms within the time period, select the most severe within that time period.
No symptom | Very Mild | Mild | Moderate | Severe | Very Severe | |
Week 1 | [ ] | [ ] | [ ] | [ ] | [ ] | [ ] |
Week 2 | [ ] | [ ] | [ ] | [ ] | [ ] | [ ] |
Week 3 | [ ] | [ ] | [ ] | [ ] | [ ] | [ ] |
Week 4 | [ ] | [ ] | [ ] | [ ] | [ ] | [ ] |
Month 2 | [ ] | [ ] | [ ] | [ ] | [ ] | [ ] |
Month 3 | [ ] | [ ] | [ ] | [ ] | [ ] | [ ] |
Month 4 | [ ] | [ ] | [ ] | [ ] | [ ] | [ ] |
Month 5 | [ ] | [ ] | [ ] | [ ] | [ ] | [ ] |
Month 6 | [ ] | [ ] | [ ] | [ ] | [ ] | [ ] |
Month 7+ | [ ] | [ ] | [ ] | [ ] | [ ] | [ ] |
4. Which of these descriptions appropriately describes your experience with relapses, and your symptom course overall? Please select all that apply:
[ ] My relapses happen in a regular pattern (monthly, daily, or weekly).
[ ] My relapses happen in an irregular pattern (randomly).
[ ] My relapses happen in response to a trigger (stress, alcohol, exercise/exertion, etc).
[ ] My relapses are getting shorter/easier over time.
[ ] My relapses are getting longer/harder over time.
[ ] My relapse severity has stayed about the same over time.
[ ] Overall, my symptoms have slowly gotten better over time.
[ ] Overall, my symptoms have stayed about the same over time.
[ ] Overall, my symptoms have slowly worsened over time.
[ ] I got worse rapidly.
[ ] I got better rapidly.
[ ] Other ___________
7. Which of these trigger a relapse or worsening of symptoms? Please select all that apply:
[ ] Stress
[ ] Alcohol
[ ] Caffeine
[ ] Heat
[ ] Period/menstruation
[ ] Week before period/menstruation
[ ] Exercise
[ ] Physical activity
[ ] Mental activity
[ ] Other ___________
Personnel and Training Required
None
Equipment Needs
None
Requirements
| Requirement Category | Required |
|---|---|
| Major equipment | No |
| Specialized training | No |
| Specialized requirements for biospecimen collection | No |
| Average time of greater than 15 minutes in an unaffected individual | No |
Mode of Administration
Self-administered questionnaire
Lifestage
Adult
Participants
Adults aged 18 years or older
Selection Rationale
PhenX used input from the PhenX Steering Committee to enable rapid response and release of COVID-19 related protocols in the Toolkit.
Language
English, Other languages available at source
Standards
| Standard | Name | ID | Source |
|---|---|---|---|
| caDSR Form | PX992015 Long Covid Symptoms Ocular Long | 14425474 | caDSR Form |
Derived Variables
None
Process and Review
Not applicable
Protocol Name from Source
Online Survey on Recovery from COVID-19
Source
University College London (2022). Online Survey on Recovery from COVID-19, Section “Ocular Section”
General References
NoneProtocol ID
992015
Variables
Export Variables| Variable Name | Variable ID | Variable Description | dbGaP Mapping | |
|---|---|---|---|---|
| PX992015_Long_COVID_Symptoms_Ocular_Long_Eye_Vision_Symptoms_Vision | ||||
| PX992015010200 | Did you experience these symptoms, and when more | N/A | ||
| PX992015_Long_COVID_Symptoms_Ocular_Long_Other_Covid_Symptoms | ||||
| PX992015020100 | Have you experienced any of these symptoms more | N/A | ||
| PX992015_Long_COVID_Symptoms_Ocular_Long_Symptom_Courses_Replase | ||||
| PX992015040100 | Which of these descriptions appropriately more | N/A | ||
| PX992015_Long_COVID_Symptoms_Ocular_Long_Symptom_Relapse_Trigger | ||||
| PX992015050100 | Which of these trigger a relapse or more | N/A | ||
| PX992015_Long_COVID_Symptoms_Ocular_Long_Symptom_Severity_Month_2 | ||||
| PX992015030500 | How severe were/are your symptoms over the more | N/A | ||
| PX992015_Long_COVID_Symptoms_Ocular_Long_Symptom_Severity_Month_4 | ||||
| PX992015030700 | How severe were/are your symptoms over the more | N/A | ||
| PX992015_Long_COVID_Symptoms_Ocular_Long_Symptom_Severity_Month_6 | ||||
| PX992015030900 | How severe were/are your symptoms over the more | N/A | ||
| PX992015_Long_COVID_Symptoms_Ocular_Long_Symptom_Severity_Week_1 | ||||
| PX992015030100 | How severe were/are your symptoms over the more | N/A | ||
| PX992015_Long_COVID_Symptoms_Ocular_Long_Symptom_Severity_Week_3 | ||||
| PX992015030300 | How severe were/are your symptoms over the more | N/A | ||
Measure Name
Long COVID - Symptoms Due to COVID-19
Release Date
March 17, 2023
Definition
This is a measure of an individual’s new or continuing COVID-19 symptoms.
Purpose
Presence of lingering COVID-19 symptoms is a sign of Long COVID, and use of this measure helps with understanding people’s experience with COVID-19 and implications of Long COVID.
Keywords
coronavirus, COVID-19, Ocular, University College London, UCL, Eye, Vision
Measure Protocols
Publications
There are no publications listed for this protocol.
FHIR
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