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DD = Data Dictionary
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Essential Protocols are needed to interpret your data. Add all Essential Protocols to your Toolkit.

Total Protocols in My Toolkit: 78
	Disapproval of Substance Use Monitoring the Future (MTF), 2015 Check all Current Age Add to Toolkit Remove
	Perceived Availability of Illegal Drugs and Alcohol Monitoring the Future (MTF), 2015 Check all Current Age Add to Toolkit Remove
	Perceived Harm of Substance Use The National Survey on Drug Use and Health (NSDUH), 2009-2010 Check all Current Age Add to Toolkit Remove
	Treatment Availability and Level of Care Treatment Episode Data Set - Admissions (TEDS-A) Check all Current Address Add to Toolkit Remove
	Unmet Need for Alcohol or Drug Treatment National Epidemiologic Survey on Alcohol and Related Conditions-III (NESARC-III) Check all Current Address Add to Toolkit Remove
	Substance Use Disorder Treatment Quality National Committee for Quality Assurance (NCQA) Quality Compass Tool Check all Current Address Add to Toolkit Remove
	Bilirubin Level National Health and Nutrition Examination Survey Questionnaire (NHANES), Laboratory Procedures Manual, 2011 Check all Current Age Ethnicity and Race Add to Toolkit Remove
	Body Temperature - Tympanic Thermometers Davie, A., et al. Best practice in the measureement of body temperature. NURS STAND, 2010 Check all Current Age Add to Toolkit Remove
	Body Temperature - Oral Thermometers Davie, A., et al. Best practice in the measureement of body temperature. NURS STAND, 2010 Check all Current Age Add to Toolkit Remove
	Chest X-ray ACR-SPR, Practice Parameter for the Performance of Chest Radiography, 2014 Check all Current Age Add to Toolkit Remove
	Haptoglobin Level National Health and Nutrition Examination Survey Questionnaire (NHANES), Laboratory Procedures Manual, 2011 Check all Current Age Ethnicity and Race Add to Toolkit Remove
	Lactate Dehydrogenase Level National Health and Nutrition Examination Survey Questionnaire (NHANES), Laboratory Procedures Manual, 2011 Check all Current Age Ethnicity and Race Add to Toolkit Remove
	Lung Function - Diffusion Capacity MacIntyre, N., et al. Standardization of the single-breath determination of carbon monoxide uptake in the lung. EUR RESPIR J, 2005 Check all Current Age Ethnicity and Race Height - Knee Height Height - Recumbent Length Height - Self-Reported Height Height - Standing Height Weight - Measured Weight Weight - Self-Reported Weight Add to Toolkit Remove
	Lung Function - Lung Volume Wanger, J. et al. Standardization of the measurement of lung volumes. EUR RESPIR J, 2005 Check all Current Age Ethnicity and Race Height - Knee Height Height - Recumbent Length Height - Self-Reported Height Height - Standing Height Weight - Measured Weight Weight - Self-Reported Weight Add to Toolkit Remove
	N-terminal Pro-brain Natriuretic Peptide (NT-proBNP) National Health and Nutrition Examination Survey Questionnaire (NHANES), Laboratory Procedures Manual, 2011 Check all Current Age Ethnicity and Race Add to Toolkit Remove
	Reticulocyte Count National Health and Nutrition Examination Survey Questionnaire (NHANES), Laboratory Procedures Manual, 2011 Check all Current Age Ethnicity and Race Add to Toolkit Remove
	Serum or Plasma Ferritin National Health and Nutrition Examination Survey Questionnaire (NHANES), Laboratory Procedures Manual, 2009-2010 Check all Current Age Ethnicity and Race Add to Toolkit Remove
	Abdominal Aortic Aneurysm San Diego Population Study (SDPS) & The Multicentre Aneurysm Screening Study (MASS), 2002 Check all Current Age Add to Toolkit Remove
	Arterial Blood Gas (ABG) Davis, M.D., et al. AARC clinical practice guideline: Blood gas analysis and hemoximetry. Respir Care, 2013 Remove
	Blood Pressure (Adult/Primary) Coronary Artery Risk Development in Young Adults (CARDIA), Y20 CARDIA VII & Framingham Heart Study (FHS), Generation 3 Check all Current Age Ethnicity and Race Add to Toolkit Remove
	Chest Computed Tomography (CT) Genetic Epidemiology of COPD Clinical Center Manual of Procedures, 2014 Check all Current Age Add to Toolkit Remove
	Deep Venous Thrombosis Womens Health Initiative (WHI) & Cardiovascular Health Study (CHS) Check all Current Age Add to Toolkit Remove
	Exercise Capacity/Six-Minute Walk Test Six-Minute Walk Test (6MWT) Check all Current Age Add to Toolkit Remove
	Heart Valve Function Cardiovascular Health Study (CHS), Baseline Medical History Questionnaire & Framingham Heart Study (FHS) Check all Current Age Add to Toolkit Remove
	History of Stroke - Ischemic Infarction and Hemorrhage Jackson Heart Study (JHS) Check all Current Age Ethnicity and Race Add to Toolkit Remove
	Peak Expiratory Flow Rate (PEFR) Miller, M. R., et al, Standardization of spirometry. Series “ATS/ERS task force: Standardization of lung function testing.”, EUR RESPIR J, 2005 Check all Current Age Add to Toolkit Remove
	Personal History of Kidney Failure Strong Heart Study, Phase IV-Family Study, Medical History Form Check all Current Age Personal History of Type I and Type II Diabetes Add to Toolkit Remove
	Peripheral Arterial Disease Womens Health Initiative (WHI), ACC/AHA Task Force on Practice Guidelines, & Hispanic Community Health Study (HCHS) Check all Current Age Ethnicity and Race Add to Toolkit Remove
	Pulmonary Embolism Womens Health Initiative (WHI) & Cardiovascular Health Study (CHS) Check all Current Age Add to Toolkit Remove
	Respiratory Rate - Child Wallis, L. A., Healy, et al, Age related reference ranges for respiration rate and heart rate from 4 to 16 years, ARCH DIS CHILD, 2005 Check all Current Age Add to Toolkit Remove
	Respiratory Rate - Adult Potter, P. A., et al. Fundamentals of Nursing, 1985 Check all Current Age Add to Toolkit Remove
	Respiratory Rate - Infant Fleming, S, et al. Normal ranges of heart rate and respiratory rate in children from birth to 18 years of age: A systemic review of observational studies. Lancer, 2011 Check all Current Age Add to Toolkit Remove
	Sleep Apnea - Adult Berlin Questionnaire Check all Current Age Height - Knee Height Height - Recumbent Length Height - Self-Reported Height Height - Standing Height Weight - Measured Weight Weight - Self-Reported Weight Add to Toolkit Remove
	Sleep Apnea - Child The Pediatric Sleep Questionnaire (PSQ), Version 070424 Check all Current Age Height - Knee Height Height - Recumbent Length Height - Self-Reported Height Height - Standing Height Weight - Measured Weight Weight - Self-Reported Weight Add to Toolkit Remove
	Spirometry - Adult Miller, M. R., et al, Standardization of spirometry. Series “ATS/ERS task force: Standardization of lung function testing.”, EUR RESPIR J, 2005 Check all Current Age Add to Toolkit Remove
	Spirometry - Child Beydon, N., et al, An official American Thoracic Society/European Respiratory Society statement: Pulmonary function testing in preschool children, AM J RESP CRIT CARE, 2007 Check all Current Age Add to Toolkit Remove
	Serum Creatinine - Assay National Health and Nutrition Examination Survey (NHANES), Laboratory Procedures Manual, 2007 Check all Current Age Ethnicity and Race Add to Toolkit Remove
	Urinary Microalbumin - Assay National Health and Nutrition Examination Survey (NHANES), Laboratory Procedures Manual, 2007 Check all Current Age Add to Toolkit Remove
	Urinary Creatinine - Assay National Health and Nutrition Examination Survey (NHANES), Laboratory Procedures Manual, 2007 Check all Current Age Add to Toolkit Remove
	Aspartate Aminotransferase Level National Health and Nutrition Examination Survey Questionnaire (NHANES), Laboratory Procedures Manual, 2011 Check all Current Age Ethnicity and Race Add to Toolkit Remove
	Counts of Acute Bleeds in Hemophilia American Thrombosis and Hemostasis Network (ATHN) dataset Core Data Elements, Version 2.0 Check all Current Age Add to Toolkit Remove
	Factor IX Activity in Plasma Using the Chromogenic Substrate Assay Blanchette et al. Definitions in hemophilia: communication from the SSC of the ISTH. J Thromb Haemost, 2014 Check all Current Age Add to Toolkit Remove
	Factor IX Activity in Plasma Using the One-Stage Clotting Factor Assay Blanchette et al. Definitions in hemophilia: communication from the SSC of the ISTH. J Thromb Haemost, 2014 Check all Current Age Add to Toolkit Remove
	Factor VIII Activity in Plasma Using the Chromogenic Substrate Assay Blanchette et al. Definitions in hemophilia: communication from the SSC of the ISTH. J Thromb Haemost, 2014 Check all Current Age Add to Toolkit Remove
	Factor VIII Activity in Plasma Using the One-Stage Clotting Factor Assay Blanchette et al. Definitions in hemophilia: communication from the SSC of the ISTH. J Thromb Haemost, 2014 Check all Current Age Add to Toolkit Remove
	Determination of Factor IX Inhibitors: Bethesda Assay with Nijmegen Modification Using Chromogenic Substrate Assay Blanchette et al. Definitions in hemophilia: communication from the SSC of the ISTH. J Thromb Haemost, 2014 Check all Current Age Add to Toolkit Remove
	Determination of Factor IX Inhibitors: Bethesda Assay with or without Nijmegen Modification Using One-Stage Clotting Factor Assay Lippi, G., et al. Quality standards for sample collection in coagulation testing. Seminars in Thrombosis and Hemostasis, 2012 Check all Current Age Add to Toolkit Remove
	Determination of Factor VIII Inhibitors: Bethesda Assay with Nijmegen Modification Using Chromogenic Substrate Assay Blanchette et al. Definitions in hemophilia: communication from the SSC of the ISTH. J Thromb Haemost, 2014 Check all Current Age Add to Toolkit Remove
	Determination of Factor VIII Inhibitors: Bethesda Assay with Nijmegen Modification Using One-Stage Clotting Factor Assay Blanchette et al. Definitions in hemophilia: communication from the SSC of the ISTH. J Thromb Haemost, 2014 Check all Current Age Add to Toolkit Remove
	School Attendance - Child National Survey of Childrens Health (NSCH), 2016 Check all Current Age Add to Toolkit Remove
	School and Work Attendance - Adult Work Productivity and Activity Impairment Questionnaire (WPAI), General Health (WPAI:GH), V2.0 Check all Current Age Add to Toolkit Remove
	Disease-specific Health-related Quality of Life in Hemophilia Haem-A-QoL Check all Current Age Add to Toolkit Remove
	Hemophilia-specific Functional Ability - Child Pediatric Hemophilia Activities List (PedHAL) Check all Current Age Add to Toolkit Remove
	Hemophilia-specific Functional Ability - Adult Hemophilia Activities List (HAL) Check all Current Age Add to Toolkit Remove
	Individual Pharmacokinetic Study using One-stage Clotting Factor Assay - Standard Half-life Factor IX Products Lee et al., Scientific and Standardization Committee Communication: The Design and Analysis of Pharmacokinetic Studies of Coagulation Factors. ISTH, 2001. Check all Current Age Add to Toolkit Remove
	Individual Pharmacokinetic Study using One-stage Clotting Factor Assay - Extended Half-life Factor IX Products Adcock Funk et al., Quality standards for sample processing, transportation, and storage in hemostasis testing. Semin Thromb Hemost, 2012 Check all Current Age Add to Toolkit Remove
	Individual Pharmacokinetic Study Using Chromogenic Assay - Standard Half-life Factor IX Products Check all Current Age Add to Toolkit Remove
	Individual Pharmacokinetic Study Using Chromogenic Assay - Extended Half-life Factor IX Products Adcock Funk et al. Quality standards for sample processing, transportation, and storage in hemostasis testing. Semin Thromb Hemost, 2012 Check all Current Age Add to Toolkit Remove
	Population-based Pharmacokinetic Study Using One-stage Clotting Factor Assay - Standard Half-life Factor IX Products Iorio et al. Estimating and interpreting the pharmacokinetic profiles of individual patients with hemophilia A or B using a population pharmacokinetic approach: Communication from the SSC of the ISTH. J Thromb Haemost, 2017 Check all Current Age Add to Toolkit Remove
	Population-based Pharmacokinetic Study Using One-stage Clotting Factor Assay - Extended Half-life Factor IX Products Iorio et al. Estimating and interpreting the pharmacokinetic profiles of individual patients with hemophilia A or B using a population pharmacokinetic approach: Communication from the SSC of the ISTH. J Thromb Haemost, 2017 Check all Current Age Add to Toolkit Remove
	Population-based Pharmacokinetic Study Using Chromogenic Substrate Assay - Standard Half-life Factor IX Products Iorio et al. Estimating and interpreting the pharmacokinetic profiles of individual patients with hemophilia A or B using a population pharmacokinetic approach: Communication from the SSC of the ISTH. J Thromb Haemost, 2017 Check all Current Age Add to Toolkit Remove
	Population-based Pharmacokinetic Study Using Chromogenic Substrate Assay - Extended Half-life Factor IX Products Iorio et al. Estimating and interpreting the pharmacokinetic profiles of individual patients with hemophilia A or B using a population pharmacokinetic approach: Communication from the SSC of the ISTH. J Thromb Haemost, 2017 Check all Current Age Add to Toolkit Remove
	Individual Pharmacokinetic Study Using One-stage Clotting Factor Assay - Standard Half-life Factor VIII Products Lee et al. Scientific and Standardization Committee Communication: The Design and Analysis of Pharmacokinetic Studies of Coagulation Factors. ISTH, 2001 Check all Current Age Add to Toolkit Remove
	Individual Pharmacokinetic Study Using One-stage Clotting Factor Assay - Extended Half-life Factor VIII Products Adcock Funk et al. Quality standards for sample processing, transportation, and storage in hemostasis testing. Semin Thromb Hemost, 2012 Check all Current Age Add to Toolkit Remove
	Individual Pharmacokinetic Study Using Chromogenic Substrate Assay - Standard Half-life Factor VIII Products Lee et al. Scientific and Standardization Committee Communication: The Design and Analysis of Pharmacokinetic Studies of Coagulation Factors. ISTH, 2001 Check all Current Age Add to Toolkit Remove
	Individual Pharmacokinetic Study Using Chromogenic Substrate Assay - Extended Half-life Factor VIII Products Adcock Funk et al. Quality standards for sample processing, transportation, and storage in hemostasis testing. Semin Thromb Hemost, 2012 Check all Current Age Add to Toolkit Remove
	Population-based Pharmacokinetic Study Using One-stage Clotting Factor Assay - Standard Half-life Factor VIII Products Iorio et al. Estimating and interpreting the pharmacokinetic profiles of individual patients with hemophilia A or B using a population pharmacokinetic approach: Communication from the SSC of the ISTH. J Thromb Haemost, 2017 Check all Current Age Add to Toolkit Remove
	Population-based Pharmacokinetic Study Using One-stage Clotting Factor Assay - Extended Half-life Factor VIII Products Iorio et al. Estimating and interpreting the pharmacokinetic profiles of individual patients with hemophilia A or B using a population pharmacokinetic approach: Communication from the SSC of the ISTH. J Thromb Haemost, 2017 Check all Current Age Add to Toolkit Remove
	Population-based Pharmacokinetic Study Using Chromogenic Substrate Assay - Standard Half-life Factor VIII Products Iorio et al. Estimating and interpreting the pharmacokinetic profiles of individual patients with hemophilia A or B using a population pharmacokinetic approach: Communication from the SSC of the ISTH. J Thromb Haemost, 2017 Check all Current Age Add to Toolkit Remove
	Population-based Pharmacokinetic Study Using Chromogenic Substrate Assay - Extended Half-life Factor VIII Products Iorio et al. Estimating and interpreting the pharmacokinetic profiles of individual patients with hemophilia A or B using a population pharmacokinetic approach: Communication from the SSC of the ISTH. J Thromb Haemost, 2017 Check all Current Age Add to Toolkit Remove
	Emicizumab Therapy: Determination of Factor VIII Inhibitors Using the Bethesda Assay with Nijmegen Modification: Chromogenic Substrate Assay with Bovine Reagents Medical and Scientific Advisory Committee (MASAC) of the National Hemophilia Foundation (NHF), 2017 Check all Current Age Add to Toolkit Remove
	Emicizumab Therapy: Individual Pharmacokinetic Study of Standard Half-life Factor VIII Products: Chromogenic Substrate Assay with Bovine Reagents Medical and Scientific Advisory Committee (MASAC) of the National Hemophilia Foundation (NHF), 2017 Check all Current Age Add to Toolkit Remove
	Emicizumab Therapy: Individual Pharmacokinetic Study of Extended Half-life Factor VIII Products: Chromogenic Substrate Assay with Bovine Reagents Medical and Scientific Advisory Committee (MASAC) of the National Hemophilia Foundation (NHF), 2017 Check all Current Age Add to Toolkit Remove
	Emicizumab Therapy: Population-based Pharmacokinetic Study of Standard Half-life Factor VIII Products: Chromogenic Substrate Assay with Bovine Reagents Medical and Scientific Advisory Committee (MASAC) of the National Hemophilia Foundation (NHF), 2017 Check all Current Age Add to Toolkit Remove
	Emicizumab Therapy: Population-based Pharmacokinetic Study of Extended Half-life Factor VIII Products: Chromogenic Substrate Assay with Bovine Reagents Medical and Scientific Advisory Committee (MASAC) of the National Hemophilia Foundation (NHF), 2017 Check all Current Age Add to Toolkit Remove
	Adherence to Prophylactic Clotting Factor Treatment Regimens in Hemophilia Validated Hemophilia Regimen Treatment Adherence Scale - Prophylaxis (VERITAS-Pro(TM)) Check all Current Age Add to Toolkit Remove
	Adherence to Episodic Clotting Factor Treatment Regimens in Hemophilia Validated Hemophilia Regimen Treatment Adherence Scale - On-Demand (VERITAS-PRN(TM)) Check all Current Age Add to Toolkit Remove
	Hemophilia Joint Health Score Hemophilia Joint Health Score (HJHS), 2.1 Check all Current Age Add to Toolkit Remove
Total Protocols in My Toolkit: 78

Create Citations

To cite protocols in My Toolkit, copy & paste the text below:

PhenX Toolkit. (2026 April 06). Disapproval of Substance Use. https://www.phenxtoolkit.org/protocols/view/550202

PhenX Toolkit. (2026 April 06). Perceived Availability of Illegal Drugs and Alcohol. https://www.phenxtoolkit.org/protocols/view/550302

PhenX Toolkit. (2026 April 06). Perceived Harm of Substance Use. https://www.phenxtoolkit.org/protocols/view/550401

PhenX Toolkit. (2026 April 06). Treatment Availability and Level of Care. https://www.phenxtoolkit.org/protocols/view/550501

PhenX Toolkit. (2026 April 06). Unmet Need for Alcohol or Drug Treatment. https://www.phenxtoolkit.org/protocols/view/550702

PhenX Toolkit. (2026 April 06). Substance Use Disorder Treatment Quality. https://www.phenxtoolkit.org/protocols/view/550901

PhenX Toolkit. (2026 April 06). Bilirubin Level. https://www.phenxtoolkit.org/protocols/view/810901

PhenX Toolkit. (2026 April 06). Body Temperature - Tympanic Thermometers. https://www.phenxtoolkit.org/protocols/view/810101

PhenX Toolkit. (2026 April 06). Body Temperature - Oral Thermometers. https://www.phenxtoolkit.org/protocols/view/810102

PhenX Toolkit. (2026 April 06). Chest X-ray. https://www.phenxtoolkit.org/protocols/view/810201

PhenX Toolkit. (2026 April 06). Haptoglobin Level. https://www.phenxtoolkit.org/protocols/view/810801

PhenX Toolkit. (2026 April 06). Lactate Dehydrogenase Level. https://www.phenxtoolkit.org/protocols/view/811001

PhenX Toolkit. (2026 April 06). Lung Function - Diffusion Capacity. https://www.phenxtoolkit.org/protocols/view/810301

PhenX Toolkit. (2026 April 06). Lung Function - Lung Volume. https://www.phenxtoolkit.org/protocols/view/810401

PhenX Toolkit. (2026 April 06). N-terminal Pro-brain Natriuretic Peptide (NT-proBNP). https://www.phenxtoolkit.org/protocols/view/810501

PhenX Toolkit. (2026 April 06). Reticulocyte Count. https://www.phenxtoolkit.org/protocols/view/810601

PhenX Toolkit. (2026 April 06). Serum or Plasma Ferritin. https://www.phenxtoolkit.org/protocols/view/811301

PhenX Toolkit. (2026 April 06). Abdominal Aortic Aneurysm. https://www.phenxtoolkit.org/protocols/view/41001

PhenX Toolkit. (2026 April 06). Arterial Blood Gas (ABG). https://www.phenxtoolkit.org/protocols/view/90202

PhenX Toolkit. (2026 April 06). Blood Pressure (Adult/Primary). https://www.phenxtoolkit.org/protocols/view/40301

PhenX Toolkit. (2026 April 06). Chest Computed Tomography (CT). https://www.phenxtoolkit.org/protocols/view/90402

PhenX Toolkit. (2026 April 06). Deep Venous Thrombosis. https://www.phenxtoolkit.org/protocols/view/41201

PhenX Toolkit. (2026 April 06). Exercise Capacity/Six-Minute Walk Test. https://www.phenxtoolkit.org/protocols/view/90602

PhenX Toolkit. (2026 April 06). Heart Valve Function. https://www.phenxtoolkit.org/protocols/view/40501

PhenX Toolkit. (2026 April 06). History of Stroke - Ischemic Infarction and Hemorrhage. https://www.phenxtoolkit.org/protocols/view/130301

PhenX Toolkit. (2026 April 06). Peak Expiratory Flow Rate (PEFR). https://www.phenxtoolkit.org/protocols/view/90801

PhenX Toolkit. (2026 April 06). Personal History of Kidney Failure. https://www.phenxtoolkit.org/protocols/view/140601

PhenX Toolkit. (2026 April 06). Peripheral Arterial Disease. https://www.phenxtoolkit.org/protocols/view/40901

PhenX Toolkit. (2026 April 06). Pulmonary Embolism. https://www.phenxtoolkit.org/protocols/view/41301

PhenX Toolkit. (2026 April 06). Respiratory Rate - Child. https://www.phenxtoolkit.org/protocols/view/91402

PhenX Toolkit. (2026 April 06). Respiratory Rate - Adult. https://www.phenxtoolkit.org/protocols/view/91403

PhenX Toolkit. (2026 April 06). Respiratory Rate - Infant. https://www.phenxtoolkit.org/protocols/view/91404

PhenX Toolkit. (2026 April 06). Sleep Apnea - Adult. https://www.phenxtoolkit.org/protocols/view/91501

PhenX Toolkit. (2026 April 06). Sleep Apnea - Child. https://www.phenxtoolkit.org/protocols/view/91502

PhenX Toolkit. (2026 April 06). Spirometry - Adult. https://www.phenxtoolkit.org/protocols/view/91601

PhenX Toolkit. (2026 April 06). Spirometry - Child. https://www.phenxtoolkit.org/protocols/view/91602

PhenX Toolkit. (2026 April 06). Serum Creatinine - Assay. https://www.phenxtoolkit.org/protocols/view/141401

PhenX Toolkit. (2026 April 06). Urinary Microalbumin - Assay. https://www.phenxtoolkit.org/protocols/view/141501

PhenX Toolkit. (2026 April 06). Urinary Creatinine - Assay. https://www.phenxtoolkit.org/protocols/view/141601

PhenX Toolkit. (2026 April 06). Aspartate Aminotransferase Level. https://www.phenxtoolkit.org/protocols/view/811201

PhenX Toolkit. (2026 April 06). Counts of Acute Bleeds in Hemophilia. https://www.phenxtoolkit.org/protocols/view/910101

PhenX Toolkit. (2026 April 06). Factor IX Activity in Plasma Using the Chromogenic Substrate Assay. https://www.phenxtoolkit.org/protocols/view/910201

PhenX Toolkit. (2026 April 06). Factor IX Activity in Plasma Using the One-Stage Clotting Factor Assay. https://www.phenxtoolkit.org/protocols/view/910202

PhenX Toolkit. (2026 April 06). Factor VIII Activity in Plasma Using the Chromogenic Substrate Assay. https://www.phenxtoolkit.org/protocols/view/910301

PhenX Toolkit. (2026 April 06). Factor VIII Activity in Plasma Using the One-Stage Clotting Factor Assay. https://www.phenxtoolkit.org/protocols/view/910302

PhenX Toolkit. (2026 April 06). Determination of Factor IX Inhibitors: Bethesda Assay with Nijmegen Modification Using Chromogenic Substrate Assay. https://www.phenxtoolkit.org/protocols/view/910401

PhenX Toolkit. (2026 April 06). Determination of Factor IX Inhibitors: Bethesda Assay with or without Nijmegen Modification Using One-Stage Clotting Factor Assay. https://www.phenxtoolkit.org/protocols/view/910402

PhenX Toolkit. (2026 April 06). Determination of Factor VIII Inhibitors: Bethesda Assay with Nijmegen Modification Using Chromogenic Substrate Assay. https://www.phenxtoolkit.org/protocols/view/910501

PhenX Toolkit. (2026 April 06). Determination of Factor VIII Inhibitors: Bethesda Assay with Nijmegen Modification Using One-Stage Clotting Factor Assay. https://www.phenxtoolkit.org/protocols/view/910502

PhenX Toolkit. (2026 April 06). School Attendance - Child. https://www.phenxtoolkit.org/protocols/view/910601

PhenX Toolkit. (2026 April 06). School and Work Attendance - Adult. https://www.phenxtoolkit.org/protocols/view/910602

PhenX Toolkit. (2026 April 06). Disease-specific Health-related Quality of Life in Hemophilia. https://www.phenxtoolkit.org/protocols/view/910701

PhenX Toolkit. (2026 April 06). Hemophilia-specific Functional Ability - Child. https://www.phenxtoolkit.org/protocols/view/910801

PhenX Toolkit. (2026 April 06). Hemophilia-specific Functional Ability - Adult. https://www.phenxtoolkit.org/protocols/view/910802

PhenX Toolkit. (2026 April 06). Individual Pharmacokinetic Study using One-stage Clotting Factor Assay - Standard Half-life Factor IX Products. https://www.phenxtoolkit.org/protocols/view/910901

PhenX Toolkit. (2026 April 06). Individual Pharmacokinetic Study using One-stage Clotting Factor Assay - Extended Half-life Factor IX Products. https://www.phenxtoolkit.org/protocols/view/910902

PhenX Toolkit. (2026 April 06). Individual Pharmacokinetic Study Using Chromogenic Assay - Standard Half-life Factor IX Products. https://www.phenxtoolkit.org/protocols/view/910903

PhenX Toolkit. (2026 April 06). Individual Pharmacokinetic Study Using Chromogenic Assay - Extended Half-life Factor IX Products. https://www.phenxtoolkit.org/protocols/view/910904

PhenX Toolkit. (2026 April 06). Population-based Pharmacokinetic Study Using One-stage Clotting Factor Assay - Standard Half-life Factor IX Products. https://www.phenxtoolkit.org/protocols/view/911001

PhenX Toolkit. (2026 April 06). Population-based Pharmacokinetic Study Using One-stage Clotting Factor Assay - Extended Half-life Factor IX Products. https://www.phenxtoolkit.org/protocols/view/911002

PhenX Toolkit. (2026 April 06). Population-based Pharmacokinetic Study Using Chromogenic Substrate Assay - Standard Half-life Factor IX Products. https://www.phenxtoolkit.org/protocols/view/911003

PhenX Toolkit. (2026 April 06). Population-based Pharmacokinetic Study Using Chromogenic Substrate Assay - Extended Half-life Factor IX Products. https://www.phenxtoolkit.org/protocols/view/911004

PhenX Toolkit. (2026 April 06). Individual Pharmacokinetic Study Using One-stage Clotting Factor Assay - Standard Half-life Factor VIII Products. https://www.phenxtoolkit.org/protocols/view/911101

PhenX Toolkit. (2026 April 06). Individual Pharmacokinetic Study Using One-stage Clotting Factor Assay - Extended Half-life Factor VIII Products. https://www.phenxtoolkit.org/protocols/view/911102

PhenX Toolkit. (2026 April 06). Individual Pharmacokinetic Study Using Chromogenic Substrate Assay - Standard Half-life Factor VIII Products. https://www.phenxtoolkit.org/protocols/view/911103

PhenX Toolkit. (2026 April 06). Individual Pharmacokinetic Study Using Chromogenic Substrate Assay - Extended Half-life Factor VIII Products. https://www.phenxtoolkit.org/protocols/view/911104

PhenX Toolkit. (2026 April 06). Population-based Pharmacokinetic Study Using One-stage Clotting Factor Assay - Standard Half-life Factor VIII Products. https://www.phenxtoolkit.org/protocols/view/911201

PhenX Toolkit. (2026 April 06). Population-based Pharmacokinetic Study Using One-stage Clotting Factor Assay - Extended Half-life Factor VIII Products. https://www.phenxtoolkit.org/protocols/view/911202

PhenX Toolkit. (2026 April 06). Population-based Pharmacokinetic Study Using Chromogenic Substrate Assay - Standard Half-life Factor VIII Products. https://www.phenxtoolkit.org/protocols/view/911203

PhenX Toolkit. (2026 April 06). Population-based Pharmacokinetic Study Using Chromogenic Substrate Assay - Extended Half-life Factor VIII Products. https://www.phenxtoolkit.org/protocols/view/911204

PhenX Toolkit. (2026 April 06). Emicizumab Therapy: Determination of Factor VIII Inhibitors Using the Bethesda Assay with Nijmegen Modification: Chromogenic Substrate Assay with Bovine Reagents. https://www.phenxtoolkit.org/protocols/view/911301

PhenX Toolkit. (2026 April 06). Emicizumab Therapy: Individual Pharmacokinetic Study of Standard Half-life Factor VIII Products: Chromogenic Substrate Assay with Bovine Reagents. https://www.phenxtoolkit.org/protocols/view/911401

PhenX Toolkit. (2026 April 06). Emicizumab Therapy: Individual Pharmacokinetic Study of Extended Half-life Factor VIII Products: Chromogenic Substrate Assay with Bovine Reagents. https://www.phenxtoolkit.org/protocols/view/911402

PhenX Toolkit. (2026 April 06). Emicizumab Therapy: Population-based Pharmacokinetic Study of Standard Half-life Factor VIII Products: Chromogenic Substrate Assay with Bovine Reagents. https://www.phenxtoolkit.org/protocols/view/911501

PhenX Toolkit. (2026 April 06). Emicizumab Therapy: Population-based Pharmacokinetic Study of Extended Half-life Factor VIII Products: Chromogenic Substrate Assay with Bovine Reagents. https://www.phenxtoolkit.org/protocols/view/911502

PhenX Toolkit. (2026 April 06). Adherence to Prophylactic Clotting Factor Treatment Regimens in Hemophilia. https://www.phenxtoolkit.org/protocols/view/911601

PhenX Toolkit. (2026 April 06). Adherence to Episodic Clotting Factor Treatment Regimens in Hemophilia. https://www.phenxtoolkit.org/protocols/view/911602

PhenX Toolkit. (2026 April 06). Hemophilia Joint Health Score. https://www.phenxtoolkit.org/protocols/view/911701

Data Dictionary and Data Collection Worksheet

Data Collection Worksheet (DCW): The DCW identifies each data and metadata item to be collected as required by the protocol. The DCW is provided as an MS Word document to facilitate easy integration into existing study documentation.

Data Dictionary (DD): The DD lists each variable collected by a protocol data collection worksheet (DCW) and its attributes. DDs are available in three formats: 1) RTF format captures skip patterns commonly used in epidemiologic studies; 2) CSV format is compatible with the database of Genotypes and Phenotypes (dbGaP) data submission packet; 3) REDCap ZIP file format is suitable for upload to studies being implemented in REDCap.

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