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My Toolkit

DD = Data Dictionary
DCW = Data Collection Worksheet

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Essential Protocols     

Total Protocols in My Toolkit: 27

Prothrombin Time (PT), CPT 85610

Voigt, et al. Definitions for a common standard for 2D speckle tracking echocardiography: Consensus document of the EACVI/ASE/Industry Task Force to standardize deformation imaging. European Heart Journal - Cardiovascular Imaging, 16(1), 1-11.

Psychosocial Assessment of Candidates for Transplantation (PACT)

Cure Sickle Cell Initiative (CureSCi) Transplant Conditioning Case Report Form (CRF)

Cure Sickle Cell Initiative (CureSCi) Drug Product Case Report Form and Center for International Blood and Marrow Transplant Research (CIBMTR) Form 2400 (R8.0) Pre-Transplant Essential Data, 2021

Center for International Blood and Marrow Transplant (CIBMTR), Form 2030 (R3.0) Sickle Cell Pre-HSCT Data, 2021

Center for International Blood and Marrow Transplant Research (CIBMTR), Form 2450 (R5.0) Post-Transplant Essential Data, 2020

Center for International Blood and Marrow Transplant Research (CIBMTR),Form 2450 (R5.0) Post-Transplant Essential Data, 2021

Sickle Cell Disease and Cardiovascular Risk—Red Cell Exchange Trial (SCD CARRE)

The Sickle Cell Disease and Cardiovascular Risk—Red Cell Exchange Trial (SCD CARRE)
This protocol is retired.

Thyroid Stimulating Hormone (TSH), CPT 84443

Garbowski, M. W., Carpenter, J.-P., Smith, G., Roughton, M., Alam, M. H., He, T., Pennell, D. J., & Porter, J. B. (2014). Biopsy-based calibration of T2* magnetic resonance for estimation of liver iron concentration and comparison with R2 Ferriscan. Journal of Cardiovascular Magnetic Resonance, 16, 40.

St. Pierre, T. G., et al. Single spin-echo proton transverse relaxometry of iron-loaded liver. NMR Biomedicine, 2004

American Community Survey (ACS), 2008

American Community Survey (ACS), 2008

American Community Survey (ACS), 2008

National Health and Nutrition Examination Survey (NHANES), Demographics Module, 2019-2020

Panel Study of Income Dynamics (PSID), 2007

Behavioral Risk Factor Surveillance System (BRFSS), Core Section 8: Demographics, 2018

Health Reform Monitoring Survey, 2015

Silent Cerebral Infarct Multi-Center Clinical Trial (SIT), Demographic/Phenotypic Information

Pediatric Hydroxyurea, Phase III Clinical Trial (BABY HUG), Part VII: Education - School Questionnaire

National Health Interview Survey (NHIS), Family Questionnaire, 2007

Multi-Ethnic Study of Arthrosclerosis (MESA), Medications, 2000

Cooperative Study of Sickle Cell Disease (CSSCD), Form 25 - Painful Episodes

Telen, M.J., et al. Alloimmunization in sickle cell disease: changing antibody specificities and association with chronic pain and decreased survival. TRANSFUSION, 2015

All of Us Research Program, Participant Provided Information (PPI), 2017 and Hispanic Community Health Study / Study of Latinos (HCHS/SOL)
Total Protocols in My Toolkit: 27

Essential Protocols are needed to interpret your data. Add all Essential Protocols to your Toolkit.