PhenX Toolkit: Toolkit

DD = Data Dictionary
DCW = Data Collection Worksheet

Select All Remove Selected

Essential Protocols are needed to interpret your data. Add all Essential Protocols to "My Toolkit".

Total Protocols in My Toolkit: 20
	Ataxia Rating Scale Scale for the Assessment and Rating of Ataxia (SARA) Remove Check all Current Age Add to Toolkit
	Body Proportions National Health and Nutrition Examination Survey (NHANES), Anthropometry procedures, 2007-2008 Remove Check all Arm Span Current Age Height - Knee Height Height - Recumbent Length Height - Self-Reported Height Height - Standing Height Weight - Measured Weight Weight - Self-Reported Weight Add to Toolkit
	Bone Age Tanner and Whitehouse Method (TW2) Remove Check all Current Age Add to Toolkit
	Child Oral Health Pain Child Oral Health Impact Profile-Short Form 19 (COHIP-SF 19) Remove Check all Current Age Add to Toolkit
	Complete Blood Count (CBC) National Health and Nutrition Examination Survey (NHANES), Laboratory procedures Manual, 2010 Remove Check all Current Age History of Transfusion Medication Inventory Add to Toolkit
	Disability Index Oswestry Disability Index (ODI)©, version 2.1a Remove Check all Current Age Add to Toolkit
	Disease Progression and Regression - 0-24 Months Newcastle Paediatric Mitochondrial Disease Scale (NPMDS), 0-24 months Remove Check all Current Age Add to Toolkit
	Disease Progression and Regression - 12-18 Years Newcastle Paediatric Mitochondrial Disease Scale (NPMDS), 12-18 years Remove Check all Current Age Add to Toolkit
	Disease Progression and Regression - 2-11 Years Newcastle Paediatric Mitochondrial Disease Scale (NPMDS), 2-11 years Remove Check all Current Age Add to Toolkit
	Disease Progression and Regression - Adult Newcastle Mitochondrial Disease Adult Scale (NMDAS), 12-18 years Remove Check all Current Age Add to Toolkit
	Disorders of Respiratory Control with Inherent Autonomic Dysregulation Autonomic Nervous System Questionnaire (ANSQ) American Thoracic Society (ATS) Statement on CCHS (2010) Remove Check all Current Age Add to Toolkit
	Echocardiography Phenotypes British Society of Echocardiography (BSE) Education Committee guidelines for a standard transthoracic echocardiogram (TTE) Remove Check all Current Age Height - Knee Height Height - Recumbent Length Height - Self-Reported Height Height - Standing Height Weight - Measured Weight Weight - Self-Reported Weight Add to Toolkit
	Family Health History My Family Health Portrait (MFHP) Remove Check all Current Age Add to Toolkit
	Growth Charts World Health Organization (WHO) & Centers for Disease Control and Prevention (CDC) growth charts Remove Check all Current Age Height - Knee Height Height - Recumbent Length Height - Self-Reported Height Height - Standing Height Weight - Measured Weight Weight - Self-Reported Weight Add to Toolkit
	Quality of Life - Adult Patient-Reported Outcomes Measurement Information System® (PROMIS) 29 Profile, v. 2.0 Adult Profile Remove Check all Current Age Add to Toolkit
	Quality of Life - Pediatric Patient-Reported Outcomes Measurement Information System® (PROMIS) Item Bank, v.1.1, Pediatric Profile 25 Remove Check all Current Age Add to Toolkit
	Scale of Developmental Domains of Early Childhood Mullen Scales of Early Learning Remove Check all Current Age Add to Toolkit
	Scoliosis - Physical Assessment Adams forward bend test & x-ray with Cobb technique Remove Check all Current Age Add to Toolkit
	Scoliosis - Quality of Life Pediatric Outcomes Data Collection Instrument (PODCI), v. 2.0,Parent/Child Outcomes Instrument, 2005 Remove Check all Current Age Add to Toolkit
	Sweat Chloride Test LeGrys, V.A., et al. Diagnostic sweat testing: The Cystic Fibrosis Foundation guidelines. J Pediatr, 2007 Remove Check all Current Age Add to Toolkit
Total Protocols in My Toolkit: 20