My Toolkit

DD = Data Dictionary
DCW = Data Collection Worksheet

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Data Collection Worksheet-Chinese (Word)
Data Dictionary (RTF)
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Essential Protocols are needed to interpret your data. Add all Essential Protocols to your Toolkit.

Total Protocols in My Toolkit: 63
	Epilepsy Screener - Adult Ottman Brief Epilepsy Screener, Self-reported Version Check all Current Age Add to Toolkit Remove
	Epilepsy Screener - Child/Proxy Ottman Brief Epilepsy Screener, Proxy-reported Version Check all Current Age Add to Toolkit Remove
	Executive Function The Trail Making Test - Adult Check all Current Age Ethnicity and Race Add to Toolkit Remove
	Executive Function - Child The Behavior Rating Inventory of Executive Function (BRIEF) Check all Current Age Ethnicity and Race Add to Toolkit Remove
	Executive Function - Direct Assessment - Adolescent The Trail Making Test (TMT) for Older Children Remove
	Executive Function - Direct Assessment - Adult The Trail Making Test (TMT) Remove
	Executive Function - Questionnaire - Adult Behavior Rating Inventory of Executive Function®-Adult Version (BRIEF®-A) Check all Current Age Ethnicity and Race Add to Toolkit Remove
	Executive Function - Questionnaire - Children Behavior Rating Inventory of Executive Function® (BRIEF®) Check all Current Age Ethnicity and Race Add to Toolkit Remove
	Executive Function - Questionnaire - Preschool Children The Behavior Rating Inventory of Executive Function® (BRIEF®) - Preschool Check all Current Age Ethnicity and Race Add to Toolkit Remove
	Global Mental Status Screener - Adult Montreal Cognitive Assessment (MOCA©) Check all Current Age Educational Attainment - Individual Ethnicity and Race Add to Toolkit Remove
	Global Mental Status Screener - Child The Ages & Stages Questionnaires®, Third Edition (ASQ®-3) Check all Current Age Ethnicity and Race Add to Toolkit Remove
	Global Mental Status Screener - Older Children and Adolescents Childrens Global Assessment Scale (CGAS) Check all Current Age Ethnicity and Race Add to Toolkit Remove
	Gross Motor Function - 2-4 Years Old Gross Motor Function Classification System Family Report Questionnaire (GMFCS) Check all Current Age Add to Toolkit Remove
	Gross Motor Function - 4-6 Years Old Gross Motor Function Classification System (GMFCS), Family Report Questionnaire Check all Current Age Add to Toolkit Remove
	Gross Motor Function - 6-12 Years Old Gross Motor Function Classification System (GMFCS), Family Report Questionnaire Check all Current Age Add to Toolkit Remove
	History of Head Trauma The Ohio State University Traumatic Brain Injury Identification Method Short Form (OSU TBI-ID) Check all Current Age Add to Toolkit Remove
	History of Stroke - Ischemic Infarction and Hemorrhage Jackson Heart Study (JHS) Check all Current Age Ethnicity and Race Add to Toolkit Remove
	Migraine - Adult American Migraine Study II, Self-Administered Questionnaire for Migraine Check all Current Age Add to Toolkit Remove
	Migraine - Children The Pediatric Migraine Disability Assessment (PedMIDAS) Check all Current Age Add to Toolkit Remove
	Neuropathy - Autonomic Assessment - Adult Survey of Autonomic Symptoms (SAS) Check all Current Age Add to Toolkit Remove
	Neuropathy - Clinical Assessment Charcot-Marie-Tooth Neuropathy Score Check all Current Age Add to Toolkit Remove
	Nonverbal Reasoning Ravens Progressive Matrices Check all Current Age Ethnicity and Race Add to Toolkit Remove
	Parkinsons Disease Screener - Questionnaire National Heart, Lung, and Blood Institute (NHLBI), & Framingham Heart Study, 2011 Check all Current Age Add to Toolkit Remove
	Parkinsons Disease Symptoms Movement Disorder Society United Parkinsons Disease Rating Scale (MDS-UPDRS) Check all Current Age Add to Toolkit Remove
	Signs of Essential Tremor Washington Heights-Inwood Genetic Study of Essential Tremor (WHIGET) Tremor Rating Scale Check all Current Age Add to Toolkit Remove
	Spatial Reasoning - Adolescents and Adults Wechsler Adult Intelligence Scale®, Block Design Test, Fourth Edition (WAIS®-IV) Check all Current Age Ethnicity and Race Add to Toolkit Remove
	Symptoms of Restless Legs Syndrome The Restless Legs Syndrome Rating Scale Remove
	Verbal Memory - Adult Wechsler Memory Scale®, Logical Memory subtest, Fourth Edition (WMS®-IV) Check all Current Age Ethnicity and Race Add to Toolkit Remove
	Verbal Memory - Child Childrens Memory Scale® (CMS), Verbal Memory subscales Check all Current Age Ethnicity and Race Add to Toolkit Remove
	Visual Memory - Adult Wechsler Memory Scale®, Visual Reproductions subtest, Fourth Edition (WMS®-IV) Check all Current Age Add to Toolkit Remove
	Visual Memory - Child Childrens Memory Scale® (CMS), Visual Memory subtest Check all Current Age Add to Toolkit Remove
	Working Memory - Adult Wechsler Adult Intelligence Scale®, Digit Span subtest, Fourth Edition (WAIS®-IV) Check all Current Age Ethnicity and Race Add to Toolkit Remove
	Working Memory - Child Childrens Memory Scale® (CMS), Attention and Concentration subtests Check all Current Age Ethnicity and Race Add to Toolkit Remove
	Assessment of Functional Gastrointestinal Disorders (Adolescent) Questionnaire on Pediatric Gastrointestinal Symptoms, Rome III Version (QPGS-RIII) Check all Current Age Add to Toolkit Remove
	Assessment of Functional Gastrointestinal Disorders (Adult) Questionnaire for functional gastrointestinal disorders (FGIDs), Rome III, adult questionnaire Check all Current Age Add to Toolkit Remove
	Assessment of Functional Gastrointestinal Disorders (Child) Questionnaire on Pediatric Gastrointestinal Symptoms, Rome III Version (QPGS-RIII) Check all Current Age Add to Toolkit Remove
	Assessment of Gallbladder Disease and Related Conditions National Health and Nutrition Examination Survey (NHANES) III, Adult Household Questionnaire Check all Current Age Add to Toolkit Remove
	Celiac Sprue - Assay National Health and Nutrition Examination Survey Questionnaire (NHANES), Laboratory Procedures Manual, 2009-2010 Check all Current Age Add to Toolkit Remove
	Colorectal Procedures and Outcomes (Medical Record Review) Prostate, Lung, Colorectal, and Ovarian Cancer Screening Trial (PLCO), Diagnostic Evaluation& Colorectum (DEC3/DCQ3), 07/01 Check all Current Age Add to Toolkit Remove
	Computed Tomography (CT) of the Abdominal Organs Framingham Heart Study Check all Current Age Height - Knee Height Height - Recumbent Length Height - Self-Reported Height Height - Standing Height Reproductive History - Female Reproductive History - Male Weight - Measured Weight Weight - Self-Reported Weight Add to Toolkit Remove
	Emotional Distress Patient-Reported Outcomes Measurement Information System® Item Bank, v.1.0 Remove
	Gastroesophageal Reflux Disease (GERD) Symptoms Gastroesophageal Reflux Disease Questionnaire (GerdQ) Check all Current Age Add to Toolkit Remove
	Health Impact of Inflammatory Bowel Disease Short Inflammatory Bowel Disease Questionnaire (SIBDQ)©, 1989 Check all Current Age Add to Toolkit Remove
	Liver Function - Assay National Health and Nutrition Examination Survey Questionnaire (NHANES), Laboratory procedures manual, 2007 Check all Current Age Add to Toolkit Remove
	Personal History of Gastrointestinal Conditions National Heart, Lung, and Blood Institute (NHLBI) and National Cancer Institute (NCI), Health Professionals Follow-Up Study, 2008 Check all Current Age Add to Toolkit Remove
	Physical, Social, and Mental Health Functioning (SF-36V2) SF-36v2 Health Survey Check all Current Age Add to Toolkit Remove
	Chlamydia/Gonorrhea - Assay National Health and Nutrition Examination Survey Questionnaire (NHANES), Laboratory Procedures Manual, 2007 Remove
	Conditions Relevant to Immune Response - Screener, Adult Centers for Disease Control and Prevention (CDC) Screening Questionnaire for Adult Immunization, 2009 Check all Current Age Add to Toolkit Remove
	Conditions Relevant to Immune Response - Screener, Child Centers for Disease Control and Prevention (CDC), Screening Questionnaire for Child and Teen Immunization, 2009 Check all Current Age Add to Toolkit Remove
	Cytokine Panel 12 - Assay National Health and Nutrition Examination Survey Questionnaire (NHANES), Laboratory Procedures Manual, 2007 Check all Current Age Add to Toolkit Remove
	Hepatitis B - Assay National Health and Nutrition Examination Survey (NHANES), Laboratory Procedure Manual, 2007 & U.S. Food and Drug Administration (FDAs) approved laboratory assays, 2009 Check all Current Age Add to Toolkit Remove
	Hepatitis C - Assay National Health and Nutrition Examination Survey Questionnaire (NHANES), Laboratory Procedures Manual, 2009 Check all Current Age Add to Toolkit Remove
	Herpes Simplex Virus Types 1 and 2 - Assay National Health and Nutrition Examination Survey Questionnaire (NHANES), Laboratory Procedures Manual, 2007 Check all Current Age Add to Toolkit Remove
	Human Immunodeficiency Virus (HIV) National Health and Nutrition Examination Survey Questionnaire (NHANES), Laboratory Procedures Manual, 2007 Remove
	Human Leukocyte Antigen (HLA) Genotyping - Assay Type 1 Diabetes Genetics Consortium (T1DGC), Manual Of Operations. Blood Collection and Processing, 2010 Remove
	Immunizations My Personal Health Record (MyPHR), Adult PHR Form, 2006 Check all Current Age Add to Toolkit Remove
	Injection Drug Use National Health and Nutrition Examination Survey (NHANES), 2007-2008, Drugs Use Questionnaire Remove
	International Travel History Centers for Disease Control and Prevention (CDC), GeoSentinel Questionnaire, 2008 Check all Current Age Add to Toolkit Remove
	Medical History My Personal Health Record (MyPHR), Adult PHR Form, 2006 Check all Current Age Add to Toolkit Remove
	Personal and Family History of Autoimmune and Inflammatory Disorders Lupus Family Registry and Repository (LFRR) Questionnaire, 2007 Check all Current Age Add to Toolkit Remove
	Personal History of Allergies, Infectious Diseases, and Immunizations - Adult My Personal Health Record (MyPHR), Adult PHR Form, 2006 Check all Current Age Add to Toolkit Remove
	Personal Medical History of Allergies, Infectious Diseases, and Immunizations - Child My Personal Health Record (MyPHR), Child PHR Form, 2006 Check all Current Age Add to Toolkit Remove
	Syphilis - Assay National Health and Nutrition Examination Survey Questionnaire (NHANES), Laboratory Procedures Manual, 2007 Check all Current Age Add to Toolkit Remove
Total Protocols in My Toolkit: 63

Create Citations

To cite protocols in My Toolkit, copy & paste the text below:

PhenX Toolkit. (2026 April 05). Epilepsy Screener - Adult. https://www.phenxtoolkit.org/protocols/view/130401

PhenX Toolkit. (2026 April 05). Epilepsy Screener - Child/Proxy. https://www.phenxtoolkit.org/protocols/view/130402

PhenX Toolkit. (2026 April 05). Executive Function. https://www.phenxtoolkit.org/protocols/view/131101

PhenX Toolkit. (2026 April 05). Executive Function - Child. https://www.phenxtoolkit.org/protocols/view/131102

PhenX Toolkit. (2026 April 05). Executive Function - Direct Assessment - Adolescent. https://www.phenxtoolkit.org/protocols/view/131601

PhenX Toolkit. (2026 April 05). Executive Function - Direct Assessment - Adult. https://www.phenxtoolkit.org/protocols/view/131602

PhenX Toolkit. (2026 April 05). Executive Function - Questionnaire - Adult. https://www.phenxtoolkit.org/protocols/view/131501

PhenX Toolkit. (2026 April 05). Executive Function - Questionnaire - Children. https://www.phenxtoolkit.org/protocols/view/131502

PhenX Toolkit. (2026 April 05). Executive Function - Questionnaire - Preschool Children. https://www.phenxtoolkit.org/protocols/view/131503

PhenX Toolkit. (2026 April 05). Global Mental Status Screener - Adult. https://www.phenxtoolkit.org/protocols/view/130701

PhenX Toolkit. (2026 April 05). Global Mental Status Screener - Child. https://www.phenxtoolkit.org/protocols/view/130702

PhenX Toolkit. (2026 April 05). Global Mental Status Screener - Older Children and Adolescents. https://www.phenxtoolkit.org/protocols/view/130703

PhenX Toolkit. (2026 April 05). Gross Motor Function - 2-4 Years Old. https://www.phenxtoolkit.org/protocols/view/131201

PhenX Toolkit. (2026 April 05). Gross Motor Function - 4-6 Years Old. https://www.phenxtoolkit.org/protocols/view/131202

PhenX Toolkit. (2026 April 05). Gross Motor Function - 6-12 Years Old. https://www.phenxtoolkit.org/protocols/view/131203

PhenX Toolkit. (2026 April 05). History of Head Trauma. https://www.phenxtoolkit.org/protocols/view/130601

PhenX Toolkit. (2026 April 05). History of Stroke - Ischemic Infarction and Hemorrhage. https://www.phenxtoolkit.org/protocols/view/130301

PhenX Toolkit. (2026 April 05). Migraine - Adult. https://www.phenxtoolkit.org/protocols/view/130501

PhenX Toolkit. (2026 April 05). Migraine - Children. https://www.phenxtoolkit.org/protocols/view/130502

PhenX Toolkit. (2026 April 05). Neuropathy - Autonomic Assessment - Adult. https://www.phenxtoolkit.org/protocols/view/130202

PhenX Toolkit. (2026 April 05). Neuropathy - Clinical Assessment. https://www.phenxtoolkit.org/protocols/view/130201

PhenX Toolkit. (2026 April 05). Nonverbal Reasoning. https://www.phenxtoolkit.org/protocols/view/131701

PhenX Toolkit. (2026 April 05). Parkinsons Disease Screener - Questionnaire. https://www.phenxtoolkit.org/protocols/view/131901

PhenX Toolkit. (2026 April 05). Parkinsons Disease Symptoms. https://www.phenxtoolkit.org/protocols/view/130102

PhenX Toolkit. (2026 April 05). Signs of Essential Tremor. https://www.phenxtoolkit.org/protocols/view/131301

PhenX Toolkit. (2026 April 05). Spatial Reasoning - Adolescents and Adults. https://www.phenxtoolkit.org/protocols/view/131801

PhenX Toolkit. (2026 April 05). Symptoms of Restless Legs Syndrome. https://www.phenxtoolkit.org/protocols/view/131401

PhenX Toolkit. (2026 April 05). Verbal Memory - Adult. https://www.phenxtoolkit.org/protocols/view/130801

PhenX Toolkit. (2026 April 05). Verbal Memory - Child. https://www.phenxtoolkit.org/protocols/view/130802

PhenX Toolkit. (2026 April 05). Visual Memory - Adult. https://www.phenxtoolkit.org/protocols/view/130901

PhenX Toolkit. (2026 April 05). Visual Memory - Child. https://www.phenxtoolkit.org/protocols/view/130902

PhenX Toolkit. (2026 April 05). Working Memory - Adult. https://www.phenxtoolkit.org/protocols/view/131001

PhenX Toolkit. (2026 April 05). Working Memory - Child. https://www.phenxtoolkit.org/protocols/view/131002

PhenX Toolkit. (2026 April 05). Assessment of Functional Gastrointestinal Disorders (Adolescent). https://www.phenxtoolkit.org/protocols/view/190102

PhenX Toolkit. (2026 April 05). Assessment of Functional Gastrointestinal Disorders (Adult). https://www.phenxtoolkit.org/protocols/view/190101

PhenX Toolkit. (2026 April 05). Assessment of Functional Gastrointestinal Disorders (Child). https://www.phenxtoolkit.org/protocols/view/190103

PhenX Toolkit. (2026 April 05). Assessment of Gallbladder Disease and Related Conditions. https://www.phenxtoolkit.org/protocols/view/190201

PhenX Toolkit. (2026 April 05). Celiac Sprue - Assay. https://www.phenxtoolkit.org/protocols/view/190301

PhenX Toolkit. (2026 April 05). Colorectal Procedures and Outcomes (Medical Record Review). https://www.phenxtoolkit.org/protocols/view/190401

PhenX Toolkit. (2026 April 05). Computed Tomography (CT) of the Abdominal Organs. https://www.phenxtoolkit.org/protocols/view/190501

PhenX Toolkit. (2026 April 05). Emotional Distress. https://www.phenxtoolkit.org/protocols/view/190601

PhenX Toolkit. (2026 April 05). Gastroesophageal Reflux Disease (GERD) Symptoms. https://www.phenxtoolkit.org/protocols/view/191101

PhenX Toolkit. (2026 April 05). Health Impact of Inflammatory Bowel Disease. https://www.phenxtoolkit.org/protocols/view/190701

PhenX Toolkit. (2026 April 05). Liver Function - Assay. https://www.phenxtoolkit.org/protocols/view/190801

PhenX Toolkit. (2026 April 05). Personal History of Gastrointestinal Conditions. https://www.phenxtoolkit.org/protocols/view/191001

PhenX Toolkit. (2026 April 05). Physical, Social, and Mental Health Functioning (SF-36V2). https://www.phenxtoolkit.org/protocols/view/191201

PhenX Toolkit. (2026 April 05). Chlamydia/Gonorrhea - Assay. https://www.phenxtoolkit.org/protocols/view/160101

PhenX Toolkit. (2026 April 05). Conditions Relevant to Immune Response - Screener, Adult. https://www.phenxtoolkit.org/protocols/view/160801

PhenX Toolkit. (2026 April 05). Conditions Relevant to Immune Response - Screener, Child. https://www.phenxtoolkit.org/protocols/view/160802

PhenX Toolkit. (2026 April 05). Cytokine Panel 12 - Assay. https://www.phenxtoolkit.org/protocols/view/160201

PhenX Toolkit. (2026 April 05). Hepatitis B - Assay. https://www.phenxtoolkit.org/protocols/view/160401

PhenX Toolkit. (2026 April 05). Hepatitis C - Assay. https://www.phenxtoolkit.org/protocols/view/160301

PhenX Toolkit. (2026 April 05). Herpes Simplex Virus Types 1 and 2 - Assay. https://www.phenxtoolkit.org/protocols/view/160501

PhenX Toolkit. (2026 April 05). Human Immunodeficiency Virus (HIV). https://www.phenxtoolkit.org/protocols/view/160901

PhenX Toolkit. (2026 April 05). Human Leukocyte Antigen (HLA) Genotyping - Assay. https://www.phenxtoolkit.org/protocols/view/160601

PhenX Toolkit. (2026 April 05). Immunizations. https://www.phenxtoolkit.org/protocols/view/161001

PhenX Toolkit. (2026 April 05). Injection Drug Use. https://www.phenxtoolkit.org/protocols/view/161101

PhenX Toolkit. (2026 April 05). International Travel History. https://www.phenxtoolkit.org/protocols/view/161201

PhenX Toolkit. (2026 April 05). Medical History. https://www.phenxtoolkit.org/protocols/view/161301

PhenX Toolkit. (2026 April 05). Personal and Family History of Autoimmune and Inflammatory Disorders. https://www.phenxtoolkit.org/protocols/view/161401

PhenX Toolkit. (2026 April 05). Personal History of Allergies, Infectious Diseases, and Immunizations - Adult. https://www.phenxtoolkit.org/protocols/view/161602

PhenX Toolkit. (2026 April 05). Personal Medical History of Allergies, Infectious Diseases, and Immunizations - Child. https://www.phenxtoolkit.org/protocols/view/161601

PhenX Toolkit. (2026 April 05). Syphilis - Assay. https://www.phenxtoolkit.org/protocols/view/160701

Data Dictionary and Data Collection Worksheet

Data Collection Worksheet (DCW): The DCW identifies each data and metadata item to be collected as required by the protocol. The DCW is provided as an MS Word document to facilitate easy integration into existing study documentation.

Data Dictionary (DD): The DD lists each variable collected by a protocol data collection worksheet (DCW) and its attributes. DDs are available in three formats: 1) RTF format captures skip patterns commonly used in epidemiologic studies; 2) CSV format is compatible with the database of Genotypes and Phenotypes (dbGaP) data submission packet; 3) REDCap ZIP file format is suitable for upload to studies being implemented in REDCap.

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