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Essential Protocols

Total Protocols in My Toolkit: 129
	Activities of Daily Living (ADLs) Gill, T.M., et al. A program to prevent functional decline in physically frail, elderly persons who live at home. NEW ENGL J MED, 2002 Check all Current Age Add to Toolkit Remove
	Auditory Perception and Noise Exposure National Health and Nutrition Examination Survey (NHANES), Questionnaire (SP) AUDIOMETRY - AUQ Target Group: SPs 1+, 2011 Check all Current Age Add to Toolkit Remove
	Balance Health, Aging and Body Composition (Health ABC) Study, Operations Manual Volume XIII, One Leg Stand, 2007 Check all Current Age Height - Knee Height Height - Recumbent Length Height - Self-Reported Height Height - Standing Height Weight - Measured Weight Weight - Self-Reported Weight Add to Toolkit Remove
	Behavioral Disturbances Neuropsychiatric Inventory-Questionnaire (NPI-Q) Check all Current Age Add to Toolkit Remove
	Cognitive Changes Informant Questionnaire on Cognitive Decline in the Elderly (IQCODE) Check all Current Age Add to Toolkit Remove
	Cystatin C Assay for Kidney Function National Health and Nutrition Examination Survey (NHANES), Laboratory Procedures Manual, 2007 Check all Current Age Ethnicity and Race Add to Toolkit Remove
	Dental Issues and Difficulty Chewing Health, Aging and Body Composition Study (Health ABC), Oral Health and Dental History Questions Remove
	Falls Maintenance of Balance, Independent Living, Intellect, and Zest in the Elderly of Boston (MOBILIZE Boston) Check all Current Age Add to Toolkit Remove
	Family History of Dementia and Longevity National Institute on Aging (NIA), Health and Retirement Study, Family History of Dementia and Longevity, 2016 Check all Current Age Add to Toolkit Remove
	Foot Pain Framingham Foot Assessment Clinical Tool Check all Current Age Add to Toolkit Remove
	Frailty National Institute on Aging (NIA), Study of Osteoporotic Fractures (SOF), Frailty Index Check all Current Age Add to Toolkit Remove
	Involuntary Weight Loss Health, Aging, and Body Composition Study (Health ABC), Weight History, Version 1.1a Check all Current Age Weight Loss/Gain Add to Toolkit Remove
	Knee Injury and Osteoarthritis Knee injury and Osteoarthritis Outcome Score (KOOS) Check all Current Age Add to Toolkit Remove
	Life Space The Life Space Questionnaire Check all Characteristics of Current Residence Current Age Add to Toolkit Remove
	Psychological Resilience Brief Resilience Scale (BRS) Remove
	Smell and Taste National Health and Nutrition Examination Survey (NHANES), Modified Pocket Smell Test (M-PST), 2013 Check all Current Age Current Pregnancy Status - Bioassay Add to Toolkit Remove
	Urinary Incontinence Health, Aging, and Body Composition Study (Health ABC), Urinary History Check all Current Age Add to Toolkit Remove
	Adoption of Genetic Services: Healthcare Settings Reach Effectiveness Adoption Implementation Maintenance (RE-AIM) Checklist for Study or Intervention Planning Remove
	Awareness of Pharmacogenomics Daud, A. N. A., et al. (2017). Knowledge and attitude regarding pharmacogenetics among formerly pregnant women in the Netherlands and their interest in pharmacogenetic research. BMC Pregnancy Childbirth, 17(1), 120. Check all Current Age Add to Toolkit Remove
	Baseline Knowledge of Genomics University of North Carolina Genomic Knowledge Scale (UNC-GKS) Check all Annual Household Family Income and Number of People Supported Current Age Educational Attainment - Individual Ethnicity and Race Add to Toolkit Remove
	Clinician Confidence in Returning Genetic Test Results Clinical Sequencing Evidence-Generating Research Consortium (CSER) Provider Measures - Post-Return of Results Follow-up #1 & Electronic Medical Records and Genomics (eMERGE) Post-Return of Results Provider Follow-up Questionnaire Remove
	Information Sources for Patients after Return of Results Information Seeking V2 from the Clinical Sequencing Evidence-Generating Research (CSER) Adult Patient Measures - Post-Return of Results Follow-up #2 (5-7 months post-Return of Results) Check all Current Age Add to Toolkit Remove
	Organizational Readiness for Change Organizational Readiness for Implementing Change (ORIC) Check all Current Age Ethnicity and Race Add to Toolkit Remove
	Patient Empowerment After Genetic Services and Counseling - Genomics Outcome Scale (GOS) Genomics Outcome Scale (GOS) Remove
	Patient Response to Genetic Testing Feelings About genomiC Testing Results (FACToR) Remove
	Patient Satisfaction with Genetic Counseling Genetic Counseling Satisfaction Scale (GCSS) Remove
	Perceived Compatibility with Current Clinical Practice Implementing GeNomics In pracTicE (IGNITE) Pre-implementation Provider Survey Remove
	Program Evaluation: Patient Uptake of Genetic Services Reach Effectiveness Adoption Implementation and Maintenance (RE-AIM) Checklist for Study or Intervention Planning Check all Current Age Ethnicity and Race Add to Toolkit Remove
	Regret about Healthcare Decisions Decision Regret Scale Check all Current Age Add to Toolkit Remove
	Relative Advantage of a Genomic Medicine Intervention over Current Practice Implementing GeNomics In pracTicE (IGNITE) Pre-implementation Provider Survey Remove
	Sharing Genomic Information with Relatives Family Communication from the Clinical Sequencing Evidence-Generating Research (CSER) Adult Patient Measures - Post-Return of Results Follow-up #2 (5-7 months post-Return of Results) & Electronic Medical Records and Genomics (eMERGE) Family Communication of Genetic Results Check all Current Age Add to Toolkit Remove
	Understanding Health Implications of Genomics KnowGene Check all Annual Household Family Income and Number of People Supported Current Age Educational Attainment - Individual Ethnicity and Race Add to Toolkit Remove
	Anxiety Disorders Screener - Adult Composite International Diagnostic Interview Screening Scales (CIDI-SC) 5.0, Anxiety Check all Current Age Add to Toolkit Remove
	Anxiety Disorders Symptoms - Adult Symptom Check List 90 (SCL-90) Check all Current Age Add to Toolkit Remove
	Anxiety Disorders Symptoms - Children - Parent Report The Screen for Child Anxiety Related Emotional Disorders (SCARED), Parent Report Version Check all Current Age Add to Toolkit Remove
	Anxiety Disorders Symptoms - Children - Self-Report The Screen for Child Anxiety Related Emotional Disorders (SCARED), Self-Report Version Check all Current Age Add to Toolkit Remove
	Attention-Deficit Hyperactivity Disorder Symptoms - Adult The Adult Attention-Deficit Hyperactivity Disorder Self-Report Scale (ASRS-v1.1) Remove
	Attention-Deficit Hyperactivity Disorder Symptoms - Child The Strengths and Weaknesses of Attention-Deficit/Hyperactivity Disorder Symptoms and Normal Behavior Scale (SWAN) Remove
	Depression Screener - Adults Composite International Diagnostic Interview Screening Scales (CIDI-SC) 5.0, Depression Check all Current Age Add to Toolkit Remove
	Depressive Symptoms - Adult The Quick Inventory of Depressive Symptoms (QIDS) Check all Current Age Add to Toolkit Remove
	Depressive Symptoms - Child Mood and Feelings Questionnaire (MFQ) Check all Current Age Add to Toolkit Remove
	Depressive Symptoms - Depression in Dementia The Cornell Scale for Depression in Dementia Check all Current Age Add to Toolkit Remove
	Depressive Symptoms - Geriatric Geriatric Depression Scale (GDS) - Short Form Check all Current Age Add to Toolkit Remove
	Eating Disorder Screener for DSM-5 Diagnostic and Statistical Manual of Mental Disorders (DSM-IV) & The Eating Disorder Diagnostic Scale (EDDS-5) Check all Body Image Current Age Ethnicity and Race Height - Knee Height Height - Recumbent Length Height - Self-Reported Height Height - Standing Height Weight - Measured Weight Weight - Self-Reported Weight Add to Toolkit Remove
	Eating Disorder Screener for DSM-IV Diagnostic and Statistical Manual of Mental Disorders (DSM-IV), The Eating Disorder Diagnostic Scale (EDDS) Check all Body Image Current Age Ethnicity and Race Height - Knee Height Height - Recumbent Length Height - Self-Reported Height Height - Standing Height Weight - Measured Weight Weight - Self-Reported Weight Add to Toolkit Remove
	General Distress Screener The K6 Check all Current Age Ethnicity and Race Add to Toolkit Remove
	Global Psychopathology Rating Scale - Clinical Brief Psychiatric Rating Scale Check all Current Age Current Marital Status Add to Toolkit Remove
	Global Psychopathology Rating Scale - Research Positive and Negative Syndrome Scale (PANSS) Check all Current Age Current Marital Status Add to Toolkit Remove
	Lack of Prosocial Emotions - Children - Preschool Parent Report Inventory of Callous-Unemotional Traits (ICU) Remove
	Lack of Prosocial Emotions - Children - Preschool Teacher-report Version Inventory of Callous-Unemotional Traits (ICU) Remove
	Lack of Prosocial Emotions - Children - Self-report Version Inventory of Callous-Unemotional Traits (ICU) Remove
	Lack of Prosocial Emotions - Children - Teacher-report Version Inventory of Callous-Unemotional Traits (ICU) Remove
	Personality Traits The Big Five Inventory (BFI) Check all Current Age Add to Toolkit Remove
	Psychopathy - Adult Triarchic Psychopathy Measure (TriPM) Remove
	PTSD Symptoms and Diagnosis in Children and Adolescents - DSM-4 University of California, Los Angeles, Post-traumatic Stress Disorder Reaction Index (UCLA PTSD Index), DSM-4 Remove
	PTSD Symptoms and Diagnosis in Children and Adolescents - DSM-5 University of California, Los Angeles, Post-traumatic Stress Disorder Reaction Index (UCLA PTSD Index), DSM-5 Remove
	PTSD Symptoms, Self-report - DSM 5 PTSD Checklist for DMS-5 (PCL-5) Check all General Distress Screener Life Events - Child Add to Toolkit Remove
	PTSD Symptoms, Self-report - DSM-IV PTSD Checklist for DSM-4 Check all General Distress Screener Life Events - Child Add to Toolkit Remove
	Sleep Disorders Screener National Institute of Mental Health (NIMH), Sleep Patterns and Problems Check all Current Age Add to Toolkit Remove
	Sleep Disorders Screener - Children The Sleep Disturbance Scale for Children (SDSC) Check all Current Age Add to Toolkit Remove
	Symptoms of Autism Spectrum Disorders - Adolescent Symptoms of Autism Spectrum Disorders - Adolescent Check all Current Age Add to Toolkit Remove
	Symptoms of Autism Spectrum Disorders - Adult The Autism Spectrum Quotient - Adult Version Check all Current Age Add to Toolkit Remove
	Symptoms of Autism Spectrum Disorders - Child The Childhood Autism Spectrum Test (CAST) Check all Current Age Add to Toolkit Remove
	Adequacy of Prenatal Care Kotelchuck Index (Adequacy of Prenatal Care Utilization (APNCU)) Check all Gestational Age - Maternal Interview Gestational Age - Medical Record Abstraction Add to Toolkit Remove
	Concentrations of Flame Retardants National Health and Nutrition Examination Survey (NHANES), Laboratory Procedure Manual, 2005-2006 Check all Current Age Current Pregnancy Status - Bioassay Current Pregnancy Status - Self-Report Gestational Age - Maternal Interview Gestational Age - Medical Record Abstraction Add to Toolkit Remove
	Concentrations of Phenols and Parabens National Health and Nutrition Examination Survey (NHANES) Laboratory Procedure Manual, 2011-2012 Check all Current Age Current Pregnancy Status - Bioassay Current Pregnancy Status - Self-Report Gestational Age - Maternal Interview Gestational Age - Medical Record Abstraction Add to Toolkit Remove
	Concentrations of Polychlorinated Biphenyls (PCBs) and Persistent Pesticides National Health and Nutrition Examination Survey (NHANES), Laboratory Procedure Manual, 2005-2006 Check all Current Age Current Pregnancy Status - Bioassay Current Pregnancy Status - Self-Report Gestational Age - Maternal Interview Gestational Age - Medical Record Abstraction Add to Toolkit Remove
	Concentrations of Trace Metals National Health and Nutrition Examination Survey (NHANES), Laboratory Procedure Manual, 2003-2004 Check all Current Age Current Pregnancy Status - Bioassay Current Pregnancy Status - Self-Report Gestational Age - Maternal Interview Gestational Age - Medical Record Abstraction Add to Toolkit Remove
	Current Pregnancy Status - Bioassay National Health and Nutrition Examination Survey (NHANES) Mobile Examination Center (MEC) Laboratory Procedures Manual, 2013-2014 Check all Current Age Add to Toolkit Remove
	Current Pregnancy Status - Self-Report National Health and Nutrition Examination Survey (NHANES), Reproductive Health Module, 2021-2023 Check all Current Age Add to Toolkit Remove
	Difficulties in Pregnancy Nulliparous Pregnancy Outcomes Study Monitoring Mothers-to-Be (nuMoM2b), Difficulties in Pregnancy, 2010 Remove
	Family History of Pregnancy Complications Nulliparous Pregnancy Outcomes Study Monitoring Mothers-to-Be (nuMoM2b), Difficulties in Pregnancy, 2011 Check all Current Age Add to Toolkit Remove
	Fetal Growth Assessment - Percentiles for U.S. Populations Hadlock, F.P., et al. Racial/ethnic standards for fetal groth: the NICHD Fetal Growth Studies. Am J Obstet Gynecol, 2015 Remove
	Gestational Age - Maternal Interview Boston Medical Center, Extremely Low Gestational Age Newborns (ELGAN) Study, Maternal Interview, 2002 Check all Current Age Add to Toolkit Remove
	Gestational Age - Medical Record Abstraction Project Gestational Age Check all Current Age Add to Toolkit Remove
	Gestational Diabetes Nulliparous Pregnancy Outcomes Study Monitoring Mothers-to-Be (nuMoM2b): CLA Prenatal Labs, Version 04 Check all Current Pregnancy Status - Bioassay Current Pregnancy Status - Self-Report Add to Toolkit Remove
	Health and Wellness Before, During, and After Pregnancy Early Life Exposure Assessment Tool (ELEAT), 2015 Remove
	Mode of Conception - Interview Pregnancy Risk Assessment Monitoring System (PRAMS), Phase 7 Remove
	Mode of Conception - Medical Record Abstraction Extremely Low Gestational Age Newborns (ELGAN) Chart Abstraction Form, 2002 Remove
	Mode of Delivery - Interview Pregnancy Risk Assessment Monitoring System (PRAMS), Phase 7 Remove
	Mode of Delivery - Medical Record Abstraction A Randomized Trial of Induction Versus Expectant Management (ARRIVE), 2016 Remove
	Prenatal and Postpartum Depression The Edinburgh Postnatal Depression Scale© (EPDS) Check all Current Age Current Marital Status Ethnicity and Race Add to Toolkit Remove
	Alkaline Phosphatase National Health and Nutrition Examination Survey Questionnaire (NHANES), Laboratory Procedures Manual, 2007 Check all Current Age Add to Toolkit Remove
	Arthritis/Osteoarthritis A Knee Health Study, The Kellgren-Lawrence Grading Scale, version 2.1, August 2006 Check all Current Age Add to Toolkit Remove
	Axial Spondyloarthritis (AxSpA) Bath Ankylosing Spondylitis Disease Activity Index (BASDAI) Remove
	Fracture History Study of Osteoporotic Fractures (SOF), History of Fractures Questionnaire & Framingham Osteoporosis Study Fracture Assessment Check all Current Age Height - Knee Height Height - Recumbent Length Height - Self-Reported Height Height - Standing Height Weight - Measured Weight Weight - Self-Reported Weight Add to Toolkit Remove
	Gout Flare Definition of Flare in Patients with Established Gout Check all Alcohol - 30-Day Quantity and Frequency Add to Toolkit Remove
	Knee Pain - Past 30 Days Multicenter Osteoarthritis Study (MOST) Baseline Telephone Screening Interview, Screening visit, 2003, Grant cycles 1 & 2. Check all Current Age Add to Toolkit Remove
	Low Back Pain Disability Index Roland-Morris Disability Questionnaire (RMDQ) Check all Current Age Add to Toolkit Remove
	Pain - Body Map Michigan Body Map (MBM) Remove
	Psoriatic Arthritis (PsA) - Impact of Disease European Alliance of Associations for Rheumatology (EULAR) Psoriatic Arthritis Impact of Disease: PsAID12 for Clinical Practice Remove
	Psoriatic Arthritis (PsA) - Screening Psoriasis Epidemiology Screening Tool (PEST) Remove
	Rheumatoid arthritis disease activity Clinical Disease Activity Index (CDAI) Remove
	Spine and Femur Bone Density by Dual-Energy X-ray Absorptiometry Framingham Osteoporosis Study, Generation 3, Musculoskeletal Exam Check all Current Age Ethnicity and Race Height - Knee Height Height - Recumbent Length Height - Self-Reported Height Height - Standing Height Weight - Measured Weight Weight - Self-Reported Weight Add to Toolkit Remove
	Systemic Lupus Erythematosus Damage Index for Systemic Lupus Erythematosus Arthritis Check all Autoimmune Diseases Related to Type I Diabetes Current Age Add to Toolkit Remove
	Vertebral Fracture Assessment (VFA) Vertebral Fracture: Lateral Spine DXA or X-ray Check all Current Age Spine and Femur Bone Density by Dual-Energy X-ray Absorptiometry Add to Toolkit Remove
	Epilepsy Screener - Adult Ottman Brief Epilepsy Screener, Self-reported Version Check all Current Age Add to Toolkit Remove
	Epilepsy Screener - Child/Proxy Ottman Brief Epilepsy Screener, Proxy-reported Version Check all Current Age Add to Toolkit Remove
	Executive Function The Trail Making Test - Adult Check all Current Age Ethnicity and Race Add to Toolkit Remove
	Executive Function - Child The Behavior Rating Inventory of Executive Function (BRIEF) Check all Current Age Ethnicity and Race Add to Toolkit Remove
	Executive Function - Direct Assessment - Adolescent The Trail Making Test (TMT) for Older Children Remove
	Executive Function - Direct Assessment - Adult The Trail Making Test (TMT) Remove
	Executive Function - Questionnaire - Adult Behavior Rating Inventory of Executive Function®-Adult Version (BRIEF®-A) Check all Current Age Ethnicity and Race Add to Toolkit Remove
	Executive Function - Questionnaire - Children Behavior Rating Inventory of Executive Function® (BRIEF®) Check all Current Age Ethnicity and Race Add to Toolkit Remove
	Executive Function - Questionnaire - Preschool Children The Behavior Rating Inventory of Executive Function® (BRIEF®) - Preschool Check all Current Age Ethnicity and Race Add to Toolkit Remove
	Global Mental Status Screener - Adult Montreal Cognitive Assessment (MOCA©) Check all Current Age Educational Attainment - Individual Ethnicity and Race Add to Toolkit Remove
	Global Mental Status Screener - Child The Ages & Stages Questionnaires®, Third Edition (ASQ®-3) Check all Current Age Ethnicity and Race Add to Toolkit Remove
	Global Mental Status Screener - Older Children and Adolescents Childrens Global Assessment Scale (CGAS) Check all Current Age Ethnicity and Race Add to Toolkit Remove
	Gross Motor Function - 2-4 Years Old Gross Motor Function Classification System Family Report Questionnaire (GMFCS) Check all Current Age Add to Toolkit Remove
	Gross Motor Function - 4-6 Years Old Gross Motor Function Classification System (GMFCS), Family Report Questionnaire Check all Current Age Add to Toolkit Remove
	Gross Motor Function - 6-12 Years Old Gross Motor Function Classification System (GMFCS), Family Report Questionnaire Check all Current Age Add to Toolkit Remove
	History of Head Trauma The Ohio State University Traumatic Brain Injury Identification Method Short Form (OSU TBI-ID) Check all Current Age Add to Toolkit Remove
	History of Stroke - Ischemic Infarction and Hemorrhage Jackson Heart Study (JHS) Check all Current Age Ethnicity and Race Add to Toolkit Remove
	Migraine - Adult American Migraine Study II, Self-Administered Questionnaire for Migraine Check all Current Age Add to Toolkit Remove
	Migraine - Children The Pediatric Migraine Disability Assessment (PedMIDAS) Check all Current Age Add to Toolkit Remove
	Neuropathy - Autonomic Assessment - Adult Survey of Autonomic Symptoms (SAS) Check all Current Age Add to Toolkit Remove
	Neuropathy - Clinical Assessment Charcot-Marie-Tooth Neuropathy Score Check all Current Age Add to Toolkit Remove
	Nonverbal Reasoning Ravens Progressive Matrices Check all Current Age Ethnicity and Race Add to Toolkit Remove
	Parkinsons Disease Screener - Questionnaire National Heart, Lung, and Blood Institute (NHLBI), & Framingham Heart Study, 2011 Check all Current Age Add to Toolkit Remove
	Parkinsons Disease Symptoms Movement Disorder Society United Parkinsons Disease Rating Scale (MDS-UPDRS) Check all Current Age Add to Toolkit Remove
	Signs of Essential Tremor Washington Heights-Inwood Genetic Study of Essential Tremor (WHIGET) Tremor Rating Scale Check all Current Age Add to Toolkit Remove
	Spatial Reasoning - Adolescents and Adults Wechsler Adult Intelligence Scale®, Block Design Test, Fourth Edition (WAIS®-IV) Check all Current Age Ethnicity and Race Add to Toolkit Remove
	Symptoms of Restless Legs Syndrome The Restless Legs Syndrome Rating Scale Remove
	Verbal Memory - Adult Wechsler Memory Scale®, Logical Memory subtest, Fourth Edition (WMS®-IV) Check all Current Age Ethnicity and Race Add to Toolkit Remove
	Verbal Memory - Child Childrens Memory Scale® (CMS), Verbal Memory subscales Check all Current Age Ethnicity and Race Add to Toolkit Remove
	Visual Memory - Adult Wechsler Memory Scale®, Visual Reproductions subtest, Fourth Edition (WMS®-IV) Check all Current Age Add to Toolkit Remove
	Visual Memory - Child Childrens Memory Scale® (CMS), Visual Memory subtest Check all Current Age Add to Toolkit Remove
	Working Memory - Adult Wechsler Adult Intelligence Scale®, Digit Span subtest, Fourth Edition (WAIS®-IV) Check all Current Age Ethnicity and Race Add to Toolkit Remove
	Working Memory - Child Childrens Memory Scale® (CMS), Attention and Concentration subtests Check all Current Age Ethnicity and Race Add to Toolkit Remove
Total Protocols in My Toolkit: 129

Essential Protocols are needed to interpret your data. Add all Essential Protocols to your Toolkit.

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To cite protocols in My Toolkit, copy & paste the text below:

PhenX Toolkit. (2026 January 17). Activities of Daily Living (ADLs). https://www.phenxtoolkit.org/protocols/view/250101

PhenX Toolkit. (2026 January 17). Auditory Perception and Noise Exposure. https://www.phenxtoolkit.org/protocols/view/250201

PhenX Toolkit. (2026 January 17). Balance. https://www.phenxtoolkit.org/protocols/view/170801

PhenX Toolkit. (2026 January 17). Behavioral Disturbances. https://www.phenxtoolkit.org/protocols/view/250301

PhenX Toolkit. (2026 January 17). Cognitive Changes. https://www.phenxtoolkit.org/protocols/view/250501

PhenX Toolkit. (2026 January 17). Cystatin C Assay for Kidney Function. https://www.phenxtoolkit.org/protocols/view/250701

PhenX Toolkit. (2026 January 17). Dental Issues and Difficulty Chewing. https://www.phenxtoolkit.org/protocols/view/251301

PhenX Toolkit. (2026 January 17). Falls. https://www.phenxtoolkit.org/protocols/view/250601

PhenX Toolkit. (2026 January 17). Family History of Dementia and Longevity. https://www.phenxtoolkit.org/protocols/view/250801

PhenX Toolkit. (2026 January 17). Foot Pain. https://www.phenxtoolkit.org/protocols/view/250901

PhenX Toolkit. (2026 January 17). Frailty. https://www.phenxtoolkit.org/protocols/view/251001

PhenX Toolkit. (2026 January 17). Involuntary Weight Loss. https://www.phenxtoolkit.org/protocols/view/251101

PhenX Toolkit. (2026 January 17). Knee Injury and Osteoarthritis. https://www.phenxtoolkit.org/protocols/view/250401

PhenX Toolkit. (2026 January 17). Life Space. https://www.phenxtoolkit.org/protocols/view/251201

PhenX Toolkit. (2026 January 17). Psychological Resilience. https://www.phenxtoolkit.org/protocols/view/251401

PhenX Toolkit. (2026 January 17). Smell and Taste. https://www.phenxtoolkit.org/protocols/view/251501

PhenX Toolkit. (2026 January 17). Urinary Incontinence. https://www.phenxtoolkit.org/protocols/view/251601

PhenX Toolkit. (2026 January 17). Adoption of Genetic Services: Healthcare Settings. https://www.phenxtoolkit.org/protocols/view/310201

PhenX Toolkit. (2026 January 17). Awareness of Pharmacogenomics. https://www.phenxtoolkit.org/protocols/view/310301

PhenX Toolkit. (2026 January 17). Baseline Knowledge of Genomics. https://www.phenxtoolkit.org/protocols/view/310401

PhenX Toolkit. (2026 January 17). Clinician Confidence in Returning Genetic Test Results. https://www.phenxtoolkit.org/protocols/view/310501

PhenX Toolkit. (2026 January 17). Information Sources for Patients after Return of Results. https://www.phenxtoolkit.org/protocols/view/310601

PhenX Toolkit. (2026 January 17). Organizational Readiness for Change. https://www.phenxtoolkit.org/protocols/view/310701

PhenX Toolkit. (2026 January 17). Patient Empowerment After Genetic Services and Counseling - Genomics Outcome Scale (GOS). https://www.phenxtoolkit.org/protocols/view/310801

PhenX Toolkit. (2026 January 17). Patient Response to Genetic Testing. https://www.phenxtoolkit.org/protocols/view/310901

PhenX Toolkit. (2026 January 17). Patient Satisfaction with Genetic Counseling. https://www.phenxtoolkit.org/protocols/view/311001

PhenX Toolkit. (2026 January 17). Perceived Compatibility with Current Clinical Practice. https://www.phenxtoolkit.org/protocols/view/311101

PhenX Toolkit. (2026 January 17). Program Evaluation: Patient Uptake of Genetic Services. https://www.phenxtoolkit.org/protocols/view/311201

PhenX Toolkit. (2026 January 17). Regret about Healthcare Decisions. https://www.phenxtoolkit.org/protocols/view/311301

PhenX Toolkit. (2026 January 17). Relative Advantage of a Genomic Medicine Intervention over Current Practice. https://www.phenxtoolkit.org/protocols/view/311401

PhenX Toolkit. (2026 January 17). Sharing Genomic Information with Relatives. https://www.phenxtoolkit.org/protocols/view/311501

PhenX Toolkit. (2026 January 17). Understanding Health Implications of Genomics. https://www.phenxtoolkit.org/protocols/view/311601

PhenX Toolkit. (2026 January 17). Anxiety Disorders Screener - Adult. https://www.phenxtoolkit.org/protocols/view/120203

PhenX Toolkit. (2026 January 17). Anxiety Disorders Symptoms - Adult. https://www.phenxtoolkit.org/protocols/view/121803

PhenX Toolkit. (2026 January 17). Anxiety Disorders Symptoms - Children - Parent Report. https://www.phenxtoolkit.org/protocols/view/121801

PhenX Toolkit. (2026 January 17). Anxiety Disorders Symptoms - Children - Self-Report. https://www.phenxtoolkit.org/protocols/view/121802

PhenX Toolkit. (2026 January 17). Attention-Deficit Hyperactivity Disorder Symptoms - Adult. https://www.phenxtoolkit.org/protocols/view/121501

PhenX Toolkit. (2026 January 17). Attention-Deficit Hyperactivity Disorder Symptoms - Child. https://www.phenxtoolkit.org/protocols/view/121502

PhenX Toolkit. (2026 January 17). Depression Screener - Adults. https://www.phenxtoolkit.org/protocols/view/120503

PhenX Toolkit. (2026 January 17). Depressive Symptoms - Adult. https://www.phenxtoolkit.org/protocols/view/121701

PhenX Toolkit. (2026 January 17). Depressive Symptoms - Child. https://www.phenxtoolkit.org/protocols/view/121702

PhenX Toolkit. (2026 January 17). Depressive Symptoms - Depression in Dementia. https://www.phenxtoolkit.org/protocols/view/121703

PhenX Toolkit. (2026 January 17). Depressive Symptoms - Geriatric. https://www.phenxtoolkit.org/protocols/view/121704

PhenX Toolkit. (2026 January 17). Eating Disorder Screener for DSM-5. https://www.phenxtoolkit.org/protocols/view/120602

PhenX Toolkit. (2026 January 17). Eating Disorder Screener for DSM-IV. https://www.phenxtoolkit.org/protocols/view/120601

PhenX Toolkit. (2026 January 17). General Distress Screener. https://www.phenxtoolkit.org/protocols/view/121301

PhenX Toolkit. (2026 January 17). Global Psychopathology Rating Scale - Clinical. https://www.phenxtoolkit.org/protocols/view/122102

PhenX Toolkit. (2026 January 17). Global Psychopathology Rating Scale - Research. https://www.phenxtoolkit.org/protocols/view/122101

PhenX Toolkit. (2026 January 17). Lack of Prosocial Emotions - Children - Preschool Parent Report. https://www.phenxtoolkit.org/protocols/view/121602

PhenX Toolkit. (2026 January 17). Lack of Prosocial Emotions - Children - Preschool Teacher-report Version. https://www.phenxtoolkit.org/protocols/view/121603

PhenX Toolkit. (2026 January 17). Lack of Prosocial Emotions - Children - Self-report Version. https://www.phenxtoolkit.org/protocols/view/121604

PhenX Toolkit. (2026 January 17). Lack of Prosocial Emotions - Children - Teacher-report Version. https://www.phenxtoolkit.org/protocols/view/121605

PhenX Toolkit. (2026 January 17). Personality Traits. https://www.phenxtoolkit.org/protocols/view/121101

PhenX Toolkit. (2026 January 17). Psychopathy - Adult. https://www.phenxtoolkit.org/protocols/view/121601

PhenX Toolkit. (2026 January 17). PTSD Symptoms and Diagnosis in Children and Adolescents - DSM-4. https://www.phenxtoolkit.org/protocols/view/121902

PhenX Toolkit. (2026 January 17). PTSD Symptoms and Diagnosis in Children and Adolescents - DSM-5. https://www.phenxtoolkit.org/protocols/view/121901

PhenX Toolkit. (2026 January 17). PTSD Symptoms, Self-report - DSM 5. https://www.phenxtoolkit.org/protocols/view/122002

PhenX Toolkit. (2026 January 17). PTSD Symptoms, Self-report - DSM-IV. https://www.phenxtoolkit.org/protocols/view/122001

PhenX Toolkit. (2026 January 17). Sleep Disorders Screener. https://www.phenxtoolkit.org/protocols/view/121001

PhenX Toolkit. (2026 January 17). Sleep Disorders Screener - Children. https://www.phenxtoolkit.org/protocols/view/121002

PhenX Toolkit. (2026 January 17). Symptoms of Autism Spectrum Disorders - Adolescent. https://www.phenxtoolkit.org/protocols/view/120902

PhenX Toolkit. (2026 January 17). Symptoms of Autism Spectrum Disorders - Adult. https://www.phenxtoolkit.org/protocols/view/120901

PhenX Toolkit. (2026 January 17). Symptoms of Autism Spectrum Disorders - Child. https://www.phenxtoolkit.org/protocols/view/120903

PhenX Toolkit. (2026 January 17). Adequacy of Prenatal Care. https://www.phenxtoolkit.org/protocols/view/240101

PhenX Toolkit. (2026 January 17). Concentrations of Flame Retardants. https://www.phenxtoolkit.org/protocols/view/240201

PhenX Toolkit. (2026 January 17). Concentrations of Phenols and Parabens. https://www.phenxtoolkit.org/protocols/view/240301

PhenX Toolkit. (2026 January 17). Concentrations of Polychlorinated Biphenyls (PCBs) and Persistent Pesticides. https://www.phenxtoolkit.org/protocols/view/240401

PhenX Toolkit. (2026 January 17). Concentrations of Trace Metals. https://www.phenxtoolkit.org/protocols/view/240501

PhenX Toolkit. (2026 January 17). Current Pregnancy Status - Bioassay. https://www.phenxtoolkit.org/protocols/view/240601

PhenX Toolkit. (2026 January 17). Current Pregnancy Status - Self-Report. https://www.phenxtoolkit.org/protocols/view/240603

PhenX Toolkit. (2026 January 17). Difficulties in Pregnancy. https://www.phenxtoolkit.org/protocols/view/240701

PhenX Toolkit. (2026 January 17). Family History of Pregnancy Complications. https://www.phenxtoolkit.org/protocols/view/240801

PhenX Toolkit. (2026 January 17). Fetal Growth Assessment - Percentiles for U.S. Populations. https://www.phenxtoolkit.org/protocols/view/241501

PhenX Toolkit. (2026 January 17). Gestational Age - Maternal Interview. https://www.phenxtoolkit.org/protocols/view/240901

PhenX Toolkit. (2026 January 17). Gestational Age - Medical Record Abstraction. https://www.phenxtoolkit.org/protocols/view/240902

PhenX Toolkit. (2026 January 17). Gestational Diabetes. https://www.phenxtoolkit.org/protocols/view/241001

PhenX Toolkit. (2026 January 17). Health and Wellness Before, During, and After Pregnancy. https://www.phenxtoolkit.org/protocols/view/241101

PhenX Toolkit. (2026 January 17). Mode of Conception - Interview. https://www.phenxtoolkit.org/protocols/view/241201

PhenX Toolkit. (2026 January 17). Mode of Conception - Medical Record Abstraction. https://www.phenxtoolkit.org/protocols/view/241202

PhenX Toolkit. (2026 January 17). Mode of Delivery - Interview. https://www.phenxtoolkit.org/protocols/view/241301

PhenX Toolkit. (2026 January 17). Mode of Delivery - Medical Record Abstraction. https://www.phenxtoolkit.org/protocols/view/241302

PhenX Toolkit. (2026 January 17). Prenatal and Postpartum Depression. https://www.phenxtoolkit.org/protocols/view/241401

PhenX Toolkit. (2026 January 17). Alkaline Phosphatase. https://www.phenxtoolkit.org/protocols/view/170101

PhenX Toolkit. (2026 January 17). Arthritis/Osteoarthritis. https://www.phenxtoolkit.org/protocols/view/170201

PhenX Toolkit. (2026 January 17). Axial Spondyloarthritis (AxSpA). https://www.phenxtoolkit.org/protocols/view/171101

PhenX Toolkit. (2026 January 17). Fracture History. https://www.phenxtoolkit.org/protocols/view/170901

PhenX Toolkit. (2026 January 17). Gout Flare. https://www.phenxtoolkit.org/protocols/view/171401

PhenX Toolkit. (2026 January 17). Knee Pain - Past 30 Days. https://www.phenxtoolkit.org/protocols/view/171501

PhenX Toolkit. (2026 January 17). Low Back Pain Disability Index. https://www.phenxtoolkit.org/protocols/view/171601

PhenX Toolkit. (2026 January 17). Pain - Body Map. https://www.phenxtoolkit.org/protocols/view/171701

PhenX Toolkit. (2026 January 17). Psoriatic Arthritis (PsA) - Impact of Disease. https://www.phenxtoolkit.org/protocols/view/172001

PhenX Toolkit. (2026 January 17). Psoriatic Arthritis (PsA) - Screening. https://www.phenxtoolkit.org/protocols/view/171801

PhenX Toolkit. (2026 January 17). Rheumatoid arthritis disease activity. https://www.phenxtoolkit.org/protocols/view/171901

PhenX Toolkit. (2026 January 17). Spine and Femur Bone Density by Dual-Energy X-ray Absorptiometry. https://www.phenxtoolkit.org/protocols/view/170701

PhenX Toolkit. (2026 January 17). Systemic Lupus Erythematosus. https://www.phenxtoolkit.org/protocols/view/171001

PhenX Toolkit. (2026 January 17). Vertebral Fracture Assessment (VFA). https://www.phenxtoolkit.org/protocols/view/172101

PhenX Toolkit. (2026 January 17). Epilepsy Screener - Adult. https://www.phenxtoolkit.org/protocols/view/130401

PhenX Toolkit. (2026 January 17). Epilepsy Screener - Child/Proxy. https://www.phenxtoolkit.org/protocols/view/130402

PhenX Toolkit. (2026 January 17). Executive Function. https://www.phenxtoolkit.org/protocols/view/131101

PhenX Toolkit. (2026 January 17). Executive Function - Child. https://www.phenxtoolkit.org/protocols/view/131102

PhenX Toolkit. (2026 January 17). Executive Function - Direct Assessment - Adolescent. https://www.phenxtoolkit.org/protocols/view/131601

PhenX Toolkit. (2026 January 17). Executive Function - Direct Assessment - Adult. https://www.phenxtoolkit.org/protocols/view/131602

PhenX Toolkit. (2026 January 17). Executive Function - Questionnaire - Adult. https://www.phenxtoolkit.org/protocols/view/131501

PhenX Toolkit. (2026 January 17). Executive Function - Questionnaire - Children. https://www.phenxtoolkit.org/protocols/view/131502

PhenX Toolkit. (2026 January 17). Executive Function - Questionnaire - Preschool Children. https://www.phenxtoolkit.org/protocols/view/131503

PhenX Toolkit. (2026 January 17). Global Mental Status Screener - Adult. https://www.phenxtoolkit.org/protocols/view/130701

PhenX Toolkit. (2026 January 17). Global Mental Status Screener - Child. https://www.phenxtoolkit.org/protocols/view/130702

PhenX Toolkit. (2026 January 17). Global Mental Status Screener - Older Children and Adolescents. https://www.phenxtoolkit.org/protocols/view/130703

PhenX Toolkit. (2026 January 17). Gross Motor Function - 2-4 Years Old. https://www.phenxtoolkit.org/protocols/view/131201

PhenX Toolkit. (2026 January 17). Gross Motor Function - 4-6 Years Old. https://www.phenxtoolkit.org/protocols/view/131202

PhenX Toolkit. (2026 January 17). Gross Motor Function - 6-12 Years Old. https://www.phenxtoolkit.org/protocols/view/131203

PhenX Toolkit. (2026 January 17). History of Head Trauma. https://www.phenxtoolkit.org/protocols/view/130601

PhenX Toolkit. (2026 January 17). History of Stroke - Ischemic Infarction and Hemorrhage. https://www.phenxtoolkit.org/protocols/view/130301

PhenX Toolkit. (2026 January 17). Migraine - Adult. https://www.phenxtoolkit.org/protocols/view/130501

PhenX Toolkit. (2026 January 17). Migraine - Children. https://www.phenxtoolkit.org/protocols/view/130502

PhenX Toolkit. (2026 January 17). Neuropathy - Autonomic Assessment - Adult. https://www.phenxtoolkit.org/protocols/view/130202

PhenX Toolkit. (2026 January 17). Neuropathy - Clinical Assessment. https://www.phenxtoolkit.org/protocols/view/130201

PhenX Toolkit. (2026 January 17). Nonverbal Reasoning. https://www.phenxtoolkit.org/protocols/view/131701

PhenX Toolkit. (2026 January 17). Parkinsons Disease Screener - Questionnaire. https://www.phenxtoolkit.org/protocols/view/131901

PhenX Toolkit. (2026 January 17). Parkinsons Disease Symptoms. https://www.phenxtoolkit.org/protocols/view/130102

PhenX Toolkit. (2026 January 17). Signs of Essential Tremor. https://www.phenxtoolkit.org/protocols/view/131301

PhenX Toolkit. (2026 January 17). Spatial Reasoning - Adolescents and Adults. https://www.phenxtoolkit.org/protocols/view/131801

PhenX Toolkit. (2026 January 17). Symptoms of Restless Legs Syndrome. https://www.phenxtoolkit.org/protocols/view/131401

PhenX Toolkit. (2026 January 17). Verbal Memory - Adult. https://www.phenxtoolkit.org/protocols/view/130801

PhenX Toolkit. (2026 January 17). Verbal Memory - Child. https://www.phenxtoolkit.org/protocols/view/130802

PhenX Toolkit. (2026 January 17). Visual Memory - Adult. https://www.phenxtoolkit.org/protocols/view/130901

PhenX Toolkit. (2026 January 17). Visual Memory - Child. https://www.phenxtoolkit.org/protocols/view/130902

PhenX Toolkit. (2026 January 17). Working Memory - Adult. https://www.phenxtoolkit.org/protocols/view/131001

PhenX Toolkit. (2026 January 17). Working Memory - Child. https://www.phenxtoolkit.org/protocols/view/131002

Data Dictionary and Data Collection Worksheet

Data Collection Worksheet (DCW): The DCW identifies each data and metadata item to be collected as required by the protocol. The DCW is provided as an MS Word document to facilitate easy integration into existing study documentation.

Data Dictionary (DD): The DD lists each variable collected by a protocol data collection worksheet (DCW) and its attributes. DDs are available in three formats: 1) RTF format captures skip patterns commonly used in epidemiologic studies; 2) CSV format is compatible with the database of Genotypes and Phenotypes (dbGaP) data submission packet; 3) REDCap ZIP file format is suitable for upload to studies being implemented in REDCap.

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