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DD = Data Dictionary
DCW = Data Collection Worksheet

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Essential Protocols

Total Protocols in My Toolkit: 63
	Activities of Daily Living (ADLs) Gill, T.M., et al. A program to prevent functional decline in physically frail, elderly persons who live at home. NEW ENGL J MED, 2002 Check all Current Age Add to Toolkit Remove
	Auditory Perception and Noise Exposure National Health and Nutrition Examination Survey (NHANES), Questionnaire (SP) AUDIOMETRY - AUQ Target Group: SPs 1+, 2011 Check all Current Age Add to Toolkit Remove
	Balance Health, Aging and Body Composition (Health ABC) Study, Operations Manual Volume XIII, One Leg Stand, 2007 Check all Current Age Height - Knee Height Height - Recumbent Length Height - Self-Reported Height Height - Standing Height Weight - Measured Weight Weight - Self-Reported Weight Add to Toolkit Remove
	Behavioral Disturbances Neuropsychiatric Inventory-Questionnaire (NPI-Q) Check all Current Age Add to Toolkit Remove
	Cognitive Changes Informant Questionnaire on Cognitive Decline in the Elderly (IQCODE) Check all Current Age Add to Toolkit Remove
	Cystatin C Assay for Kidney Function National Health and Nutrition Examination Survey (NHANES), Laboratory Procedures Manual, 2007 Check all Current Age Ethnicity and Race Add to Toolkit Remove
	Dental Issues and Difficulty Chewing Health, Aging and Body Composition Study (Health ABC), Oral Health and Dental History Questions Remove
	Falls Maintenance of Balance, Independent Living, Intellect, and Zest in the Elderly of Boston (MOBILIZE Boston) Check all Current Age Add to Toolkit Remove
	Family History of Dementia and Longevity National Institute on Aging (NIA), Health and Retirement Study, Family History of Dementia and Longevity, 2016 Check all Current Age Add to Toolkit Remove
	Foot Pain Framingham Foot Assessment Clinical Tool Check all Current Age Add to Toolkit Remove
	Frailty National Institute on Aging (NIA), Study of Osteoporotic Fractures (SOF), Frailty Index Check all Current Age Add to Toolkit Remove
	Involuntary Weight Loss Health, Aging, and Body Composition Study (Health ABC), Weight History, Version 1.1a Check all Current Age Weight Loss/Gain Add to Toolkit Remove
	Knee Injury and Osteoarthritis Knee injury and Osteoarthritis Outcome Score (KOOS) Check all Current Age Add to Toolkit Remove
	Life Space The Life Space Questionnaire Check all Characteristics of Current Residence Current Age Add to Toolkit Remove
	Psychological Resilience Brief Resilience Scale (BRS) Remove
	Smell and Taste National Health and Nutrition Examination Survey (NHANES), Modified Pocket Smell Test (M-PST), 2013 Check all Current Age Current Pregnancy Status - Bioassay Add to Toolkit Remove
	Urinary Incontinence Health, Aging, and Body Composition Study (Health ABC), Urinary History Check all Current Age Add to Toolkit Remove
	Adoption of Genetic Services: Healthcare Settings Reach Effectiveness Adoption Implementation Maintenance (RE-AIM) Checklist for Study or Intervention Planning Remove
	Awareness of Pharmacogenomics Daud, A. N. A., et al. (2017). Knowledge and attitude regarding pharmacogenetics among formerly pregnant women in the Netherlands and their interest in pharmacogenetic research. BMC Pregnancy Childbirth, 17(1), 120. Check all Current Age Add to Toolkit Remove
	Baseline Knowledge of Genomics University of North Carolina Genomic Knowledge Scale (UNC-GKS) Check all Annual Household Family Income and Number of People Supported Current Age Educational Attainment - Individual Ethnicity and Race Add to Toolkit Remove
	Clinician Confidence in Returning Genetic Test Results Clinical Sequencing Evidence-Generating Research Consortium (CSER) Provider Measures - Post-Return of Results Follow-up #1 & Electronic Medical Records and Genomics (eMERGE) Post-Return of Results Provider Follow-up Questionnaire Remove
	Information Sources for Patients after Return of Results Information Seeking V2 from the Clinical Sequencing Evidence-Generating Research (CSER) Adult Patient Measures - Post-Return of Results Follow-up #2 (5-7 months post-Return of Results) Check all Current Age Add to Toolkit Remove
	Organizational Readiness for Change Organizational Readiness for Implementing Change (ORIC) Check all Current Age Ethnicity and Race Add to Toolkit Remove
	Patient Empowerment After Genetic Services and Counseling - Genomics Outcome Scale (GOS) Genomics Outcome Scale (GOS) Remove
	Patient Response to Genetic Testing Feelings About genomiC Testing Results (FACToR) Remove
	Patient Satisfaction with Genetic Counseling Genetic Counseling Satisfaction Scale (GCSS) Remove
	Perceived Compatibility with Current Clinical Practice Implementing GeNomics In pracTicE (IGNITE) Pre-implementation Provider Survey Remove
	Program Evaluation: Patient Uptake of Genetic Services Reach Effectiveness Adoption Implementation and Maintenance (RE-AIM) Checklist for Study or Intervention Planning Check all Current Age Ethnicity and Race Add to Toolkit Remove
	Regret about Healthcare Decisions Decision Regret Scale Check all Current Age Add to Toolkit Remove
	Relative Advantage of a Genomic Medicine Intervention over Current Practice Implementing GeNomics In pracTicE (IGNITE) Pre-implementation Provider Survey Remove
	Sharing Genomic Information with Relatives Family Communication from the Clinical Sequencing Evidence-Generating Research (CSER) Adult Patient Measures - Post-Return of Results Follow-up #2 (5-7 months post-Return of Results) & Electronic Medical Records and Genomics (eMERGE) Family Communication of Genetic Results Check all Current Age Add to Toolkit Remove
	Understanding Health Implications of Genomics KnowGene Check all Annual Household Family Income and Number of People Supported Current Age Educational Attainment - Individual Ethnicity and Race Add to Toolkit Remove
	Anxiety Disorders Screener - Adult Composite International Diagnostic Interview Screening Scales (CIDI-SC) 5.0, Anxiety Check all Current Age Add to Toolkit Remove
	Anxiety Disorders Symptoms - Adult Symptom Check List 90 (SCL-90) Check all Current Age Add to Toolkit Remove
	Anxiety Disorders Symptoms - Children - Parent Report The Screen for Child Anxiety Related Emotional Disorders (SCARED), Parent Report Version Check all Current Age Add to Toolkit Remove
	Anxiety Disorders Symptoms - Children - Self-Report The Screen for Child Anxiety Related Emotional Disorders (SCARED), Self-Report Version Check all Current Age Add to Toolkit Remove
	Attention-Deficit Hyperactivity Disorder Symptoms - Adult The Adult Attention-Deficit Hyperactivity Disorder Self-Report Scale (ASRS-v1.1) Remove
	Attention-Deficit Hyperactivity Disorder Symptoms - Child The Strengths and Weaknesses of Attention-Deficit/Hyperactivity Disorder Symptoms and Normal Behavior Scale (SWAN) Remove
	Depression Screener - Adults Composite International Diagnostic Interview Screening Scales (CIDI-SC) 5.0, Depression Check all Current Age Add to Toolkit Remove
	Depressive Symptoms - Adult The Quick Inventory of Depressive Symptoms (QIDS) Check all Current Age Add to Toolkit Remove
	Depressive Symptoms - Child Mood and Feelings Questionnaire (MFQ) Check all Current Age Add to Toolkit Remove
	Depressive Symptoms - Depression in Dementia The Cornell Scale for Depression in Dementia Check all Current Age Add to Toolkit Remove
	Depressive Symptoms - Geriatric Geriatric Depression Scale (GDS) - Short Form Check all Current Age Add to Toolkit Remove
	Eating Disorder Screener for DSM-5 Diagnostic and Statistical Manual of Mental Disorders (DSM-IV) & The Eating Disorder Diagnostic Scale (EDDS-5) Check all Body Image Current Age Ethnicity and Race Height - Knee Height Height - Recumbent Length Height - Self-Reported Height Height - Standing Height Weight - Measured Weight Weight - Self-Reported Weight Add to Toolkit Remove
	Eating Disorder Screener for DSM-IV Diagnostic and Statistical Manual of Mental Disorders (DSM-IV), The Eating Disorder Diagnostic Scale (EDDS) Check all Body Image Current Age Ethnicity and Race Height - Knee Height Height - Recumbent Length Height - Self-Reported Height Height - Standing Height Weight - Measured Weight Weight - Self-Reported Weight Add to Toolkit Remove
	General Distress Screener The K6 Check all Current Age Ethnicity and Race Add to Toolkit Remove
	Global Psychopathology Rating Scale - Clinical Brief Psychiatric Rating Scale Check all Current Age Current Marital Status Add to Toolkit Remove
	Global Psychopathology Rating Scale - Research Positive and Negative Syndrome Scale (PANSS) Check all Current Age Current Marital Status Add to Toolkit Remove
	Lack of Prosocial Emotions - Children - Preschool Parent Report Inventory of Callous-Unemotional Traits (ICU) Remove
	Lack of Prosocial Emotions - Children - Preschool Teacher-report Version Inventory of Callous-Unemotional Traits (ICU) Remove
	Lack of Prosocial Emotions - Children - Self-report Version Inventory of Callous-Unemotional Traits (ICU) Remove
	Lack of Prosocial Emotions - Children - Teacher-report Version Inventory of Callous-Unemotional Traits (ICU) Remove
	Personality Traits The Big Five Inventory (BFI) Check all Current Age Add to Toolkit Remove
	Psychopathy - Adult Triarchic Psychopathy Measure (TriPM) Remove
	PTSD Symptoms and Diagnosis in Children and Adolescents - DSM-4 University of California, Los Angeles, Post-traumatic Stress Disorder Reaction Index (UCLA PTSD Index), DSM-4 Remove
	PTSD Symptoms and Diagnosis in Children and Adolescents - DSM-5 University of California, Los Angeles, Post-traumatic Stress Disorder Reaction Index (UCLA PTSD Index), DSM-5 Remove
	PTSD Symptoms, Self-report - DSM 5 PTSD Checklist for DMS-5 (PCL-5) Check all General Distress Screener Life Events - Child Add to Toolkit Remove
	PTSD Symptoms, Self-report - DSM-IV PTSD Checklist for DSM-4 Check all General Distress Screener Life Events - Child Add to Toolkit Remove
	Sleep Disorders Screener National Institute of Mental Health (NIMH), Sleep Patterns and Problems Check all Current Age Add to Toolkit Remove
	Sleep Disorders Screener - Children The Sleep Disturbance Scale for Children (SDSC) Check all Current Age Add to Toolkit Remove
	Symptoms of Autism Spectrum Disorders - Adolescent Symptoms of Autism Spectrum Disorders - Adolescent Check all Current Age Add to Toolkit Remove
	Symptoms of Autism Spectrum Disorders - Adult The Autism Spectrum Quotient - Adult Version Check all Current Age Add to Toolkit Remove
	Symptoms of Autism Spectrum Disorders - Child The Childhood Autism Spectrum Test (CAST) Check all Current Age Add to Toolkit Remove
Total Protocols in My Toolkit: 63

Essential Protocols are needed to interpret your data. Add all Essential Protocols to your Toolkit.

Create Citations

To cite protocols in My Toolkit, copy & paste the text below:

PhenX Toolkit. (2026 January 17). Activities of Daily Living (ADLs). https://www.phenxtoolkit.org/protocols/view/250101

PhenX Toolkit. (2026 January 17). Auditory Perception and Noise Exposure. https://www.phenxtoolkit.org/protocols/view/250201

PhenX Toolkit. (2026 January 17). Balance. https://www.phenxtoolkit.org/protocols/view/170801

PhenX Toolkit. (2026 January 17). Behavioral Disturbances. https://www.phenxtoolkit.org/protocols/view/250301

PhenX Toolkit. (2026 January 17). Cognitive Changes. https://www.phenxtoolkit.org/protocols/view/250501

PhenX Toolkit. (2026 January 17). Cystatin C Assay for Kidney Function. https://www.phenxtoolkit.org/protocols/view/250701

PhenX Toolkit. (2026 January 17). Dental Issues and Difficulty Chewing. https://www.phenxtoolkit.org/protocols/view/251301

PhenX Toolkit. (2026 January 17). Falls. https://www.phenxtoolkit.org/protocols/view/250601

PhenX Toolkit. (2026 January 17). Family History of Dementia and Longevity. https://www.phenxtoolkit.org/protocols/view/250801

PhenX Toolkit. (2026 January 17). Foot Pain. https://www.phenxtoolkit.org/protocols/view/250901

PhenX Toolkit. (2026 January 17). Frailty. https://www.phenxtoolkit.org/protocols/view/251001

PhenX Toolkit. (2026 January 17). Involuntary Weight Loss. https://www.phenxtoolkit.org/protocols/view/251101

PhenX Toolkit. (2026 January 17). Knee Injury and Osteoarthritis. https://www.phenxtoolkit.org/protocols/view/250401

PhenX Toolkit. (2026 January 17). Life Space. https://www.phenxtoolkit.org/protocols/view/251201

PhenX Toolkit. (2026 January 17). Psychological Resilience. https://www.phenxtoolkit.org/protocols/view/251401

PhenX Toolkit. (2026 January 17). Smell and Taste. https://www.phenxtoolkit.org/protocols/view/251501

PhenX Toolkit. (2026 January 17). Urinary Incontinence. https://www.phenxtoolkit.org/protocols/view/251601

PhenX Toolkit. (2026 January 17). Adoption of Genetic Services: Healthcare Settings. https://www.phenxtoolkit.org/protocols/view/310201

PhenX Toolkit. (2026 January 17). Awareness of Pharmacogenomics. https://www.phenxtoolkit.org/protocols/view/310301

PhenX Toolkit. (2026 January 17). Baseline Knowledge of Genomics. https://www.phenxtoolkit.org/protocols/view/310401

PhenX Toolkit. (2026 January 17). Clinician Confidence in Returning Genetic Test Results. https://www.phenxtoolkit.org/protocols/view/310501

PhenX Toolkit. (2026 January 17). Information Sources for Patients after Return of Results. https://www.phenxtoolkit.org/protocols/view/310601

PhenX Toolkit. (2026 January 17). Organizational Readiness for Change. https://www.phenxtoolkit.org/protocols/view/310701

PhenX Toolkit. (2026 January 17). Patient Empowerment After Genetic Services and Counseling - Genomics Outcome Scale (GOS). https://www.phenxtoolkit.org/protocols/view/310801

PhenX Toolkit. (2026 January 17). Patient Response to Genetic Testing. https://www.phenxtoolkit.org/protocols/view/310901

PhenX Toolkit. (2026 January 17). Patient Satisfaction with Genetic Counseling. https://www.phenxtoolkit.org/protocols/view/311001

PhenX Toolkit. (2026 January 17). Perceived Compatibility with Current Clinical Practice. https://www.phenxtoolkit.org/protocols/view/311101

PhenX Toolkit. (2026 January 17). Program Evaluation: Patient Uptake of Genetic Services. https://www.phenxtoolkit.org/protocols/view/311201

PhenX Toolkit. (2026 January 17). Regret about Healthcare Decisions. https://www.phenxtoolkit.org/protocols/view/311301

PhenX Toolkit. (2026 January 17). Relative Advantage of a Genomic Medicine Intervention over Current Practice. https://www.phenxtoolkit.org/protocols/view/311401

PhenX Toolkit. (2026 January 17). Sharing Genomic Information with Relatives. https://www.phenxtoolkit.org/protocols/view/311501

PhenX Toolkit. (2026 January 17). Understanding Health Implications of Genomics. https://www.phenxtoolkit.org/protocols/view/311601

PhenX Toolkit. (2026 January 17). Anxiety Disorders Screener - Adult. https://www.phenxtoolkit.org/protocols/view/120203

PhenX Toolkit. (2026 January 17). Anxiety Disorders Symptoms - Adult. https://www.phenxtoolkit.org/protocols/view/121803

PhenX Toolkit. (2026 January 17). Anxiety Disorders Symptoms - Children - Parent Report. https://www.phenxtoolkit.org/protocols/view/121801

PhenX Toolkit. (2026 January 17). Anxiety Disorders Symptoms - Children - Self-Report. https://www.phenxtoolkit.org/protocols/view/121802

PhenX Toolkit. (2026 January 17). Attention-Deficit Hyperactivity Disorder Symptoms - Adult. https://www.phenxtoolkit.org/protocols/view/121501

PhenX Toolkit. (2026 January 17). Attention-Deficit Hyperactivity Disorder Symptoms - Child. https://www.phenxtoolkit.org/protocols/view/121502

PhenX Toolkit. (2026 January 17). Depression Screener - Adults. https://www.phenxtoolkit.org/protocols/view/120503

PhenX Toolkit. (2026 January 17). Depressive Symptoms - Adult. https://www.phenxtoolkit.org/protocols/view/121701

PhenX Toolkit. (2026 January 17). Depressive Symptoms - Child. https://www.phenxtoolkit.org/protocols/view/121702

PhenX Toolkit. (2026 January 17). Depressive Symptoms - Depression in Dementia. https://www.phenxtoolkit.org/protocols/view/121703

PhenX Toolkit. (2026 January 17). Depressive Symptoms - Geriatric. https://www.phenxtoolkit.org/protocols/view/121704

PhenX Toolkit. (2026 January 17). Eating Disorder Screener for DSM-5. https://www.phenxtoolkit.org/protocols/view/120602

PhenX Toolkit. (2026 January 17). Eating Disorder Screener for DSM-IV. https://www.phenxtoolkit.org/protocols/view/120601

PhenX Toolkit. (2026 January 17). General Distress Screener. https://www.phenxtoolkit.org/protocols/view/121301

PhenX Toolkit. (2026 January 17). Global Psychopathology Rating Scale - Clinical. https://www.phenxtoolkit.org/protocols/view/122102

PhenX Toolkit. (2026 January 17). Global Psychopathology Rating Scale - Research. https://www.phenxtoolkit.org/protocols/view/122101

PhenX Toolkit. (2026 January 17). Lack of Prosocial Emotions - Children - Preschool Parent Report. https://www.phenxtoolkit.org/protocols/view/121602

PhenX Toolkit. (2026 January 17). Lack of Prosocial Emotions - Children - Preschool Teacher-report Version. https://www.phenxtoolkit.org/protocols/view/121603

PhenX Toolkit. (2026 January 17). Lack of Prosocial Emotions - Children - Self-report Version. https://www.phenxtoolkit.org/protocols/view/121604

PhenX Toolkit. (2026 January 17). Lack of Prosocial Emotions - Children - Teacher-report Version. https://www.phenxtoolkit.org/protocols/view/121605

PhenX Toolkit. (2026 January 17). Personality Traits. https://www.phenxtoolkit.org/protocols/view/121101

PhenX Toolkit. (2026 January 17). Psychopathy - Adult. https://www.phenxtoolkit.org/protocols/view/121601

PhenX Toolkit. (2026 January 17). PTSD Symptoms and Diagnosis in Children and Adolescents - DSM-4. https://www.phenxtoolkit.org/protocols/view/121902

PhenX Toolkit. (2026 January 17). PTSD Symptoms and Diagnosis in Children and Adolescents - DSM-5. https://www.phenxtoolkit.org/protocols/view/121901

PhenX Toolkit. (2026 January 17). PTSD Symptoms, Self-report - DSM 5. https://www.phenxtoolkit.org/protocols/view/122002

PhenX Toolkit. (2026 January 17). PTSD Symptoms, Self-report - DSM-IV. https://www.phenxtoolkit.org/protocols/view/122001

PhenX Toolkit. (2026 January 17). Sleep Disorders Screener. https://www.phenxtoolkit.org/protocols/view/121001

PhenX Toolkit. (2026 January 17). Sleep Disorders Screener - Children. https://www.phenxtoolkit.org/protocols/view/121002

PhenX Toolkit. (2026 January 17). Symptoms of Autism Spectrum Disorders - Adolescent. https://www.phenxtoolkit.org/protocols/view/120902

PhenX Toolkit. (2026 January 17). Symptoms of Autism Spectrum Disorders - Adult. https://www.phenxtoolkit.org/protocols/view/120901

PhenX Toolkit. (2026 January 17). Symptoms of Autism Spectrum Disorders - Child. https://www.phenxtoolkit.org/protocols/view/120903

Data Dictionary and Data Collection Worksheet

Data Collection Worksheet (DCW): The DCW identifies each data and metadata item to be collected as required by the protocol. The DCW is provided as an MS Word document to facilitate easy integration into existing study documentation.

Data Dictionary (DD): The DD lists each variable collected by a protocol data collection worksheet (DCW) and its attributes. DDs are available in three formats: 1) RTF format captures skip patterns commonly used in epidemiologic studies; 2) CSV format is compatible with the database of Genotypes and Phenotypes (dbGaP) data submission packet; 3) REDCap ZIP file format is suitable for upload to studies being implemented in REDCap.

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